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  • Catherine21
    Catherine21 Posts: 7,282 Championing

    I have bpd too awaiting adhd test also yh I took myself off online banking as I was checking what I had and was spending it or sometimes I'd have in it my basket thinking had noting in account and press pay and it's ordered I did that with 100 pound worth of creams yes it is from childhood trauma just started that with pshyctrisis god can't spell it very traumatic to say the lease that's good your getting help I love when you find things you forgot about

  • Elvisdog
    Elvisdog Online Community Member Posts: 148 Empowering

    @Schildpad it's really good that you are working through things, it's not easy and it's a long journey but it's a start and seeing empty boxes is such a big achievement . Take things at your own pace, you are doing this for yourself and you sound like you are in a better place.

    Im not totally understanding of the new ESA, I went through transion from ESA SG to UC but I kept an element of the disability premium with ESA which I receive every two weeks, UC take the amount they pay me from how much they pay me monthly, I didn't want a payment each month, which can be 5weeks for the longer months, having some of my money fortnightly helps me manage my money better. Speaking to the ESA help line helped me understand what I was able to do. I don't know if there is a point where everything is done by UC but while it lasts that's what I'm sticking too.

  • Ranald
    Ranald Online Community Member Posts: 2,147 Championing

    Had powerchair demo, getting Quickie 700M, with raise and tilt. Very impressed.

  • Elvisdog
    Elvisdog Online Community Member Posts: 148 Empowering

    @Catherine21 I had my diagnosis over two decades ago. At first I was really upset, I had been under mental health seeing psychiatrist and my care coordinator. They sent me a letter covering my last appointment, on it was letters and numbers stating a diagnosis I looked them all up on line and i was totally bewildered, at that time I read different magazines another one of my habits. I read the article on the English nanny accused of killing a child, it said she had BPD, i got the information over a weekend and I was out of my mind. My coordinator had seen the diagnosis on my letter and knew exactly what I would do and called me before I could call her. It took alot of discussions before I understood the criteria for the diagnosis I finally came to terms with it, I helped run a mental health group, we all have different diagnosis and stories, they became very close friends and love them dearly, ive not been well enough to see them since Christmas but I'll keep on working on getting better enough to get back to our Monday meetings.

    It's good that you are getting mental health support, it's not easy i had sessions what made me physically ill but keep with it, it will get easier being able to talk to people who understand is important, I only discussed things that I felt comfortable with at first but eventually I felt safe enough to share my trauma, my sister was the only other person who knew everything as she went through it too. She passed in 2008, miss her terribly. I.hope everything goes well for you, and sorry for going on, this is one of the reasons my family think I've got ADHD lol.

  • Schildpad
    Schildpad Online Community Member Posts: 370 Empowering

    @Elvisdog thank you,, yes step by step. it is very hard for me to make decisions or do simple tasks like throwing stuff away. Yes i have a call tomorrow and i hope it will be quick. i need to know what will be the final amount but it is dreading to think i might not get the same or maybe a lot less. i wont be happy if it is a lot less. but i need all my expenses covered. i will see next month. it is complicated… i have not received a monthly salary since i was working… i think it is probably better before. every two weeks. But i will see.. in a way i hope uc is enough money with housing benefit. but i believe you need the new style of Esa to top it up.. i am new universal credit and new style esa on this and i still do not understand the whole thing. But i only hope it will be quick and they will not harass me. i am very tired about the whole thing. i feel i am always fighting. i am dreading they will stop the new esa and i will have not enough with the universal credit. i am always worry…… always..

  • michael57
    michael57 Online Community Member Posts: 1,614 Championing
  • Amberpearl
    Amberpearl Online Community Member Posts: 2,811 Championing

    I'm. Nodding off

  • Ranald
    Ranald Online Community Member Posts: 2,147 Championing

    Free entry to the 'fitba', but as a fan, i'll Just settle for the prime spot and buy my ticket.

  • Schildpad
    Schildpad Online Community Member Posts: 370 Empowering

    Good night. Anyway time to watch some telly. I hope tomorrow will be ok. But I am very scared about tomorrow .

    I hope it will be ok.. hope you all have a nice and restful night ..

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 14,166 Championing

    good morning everyone

  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 12,975 Championing
    edited July 29

    Good morning everyone. Raining here.

  • durhamjaide2001
    durhamjaide2001 Scope Member Posts: 14,166 Championing

    How is everyone doing?

  • Elvisdog
    Elvisdog Online Community Member Posts: 148 Empowering

    Good morning everyone I hope everyone is OK this morning. Light rain on and off here today, still warm.

  • Amberpearl
    Amberpearl Online Community Member Posts: 2,811 Championing

    Sunny here 16 degrees

  • Mary_Scope
    Mary_Scope Posts: 2,122 Scope Online Community Children and Family Specialists

    Good morning all!

    It's a bit cloudy here but a bit warm.

    Hope you all managed to get a decent sleep, any plans for today?

  • luvpink
    luvpink Online Community Member Posts: 2,518 Championing

    I have woken up tired again.

    Its dull here and looking like it will rain.

  • Schildpad
    Schildpad Online Community Member Posts: 370 Empowering

    morning …. very cloudy here ….. a lot cooler than yesterday. i got that dreading call today. i will see what happen… my uc account says they tell me how much i will get on the 7th August. and they will pay before the 11th August. but this call is for the new style ESA. i will see how it goes.. My Pip is back but again i will see for how long. .. i am always scared they will take it away. i really need to try to get something workwise but it is so so so hard i can not see it possible.. i do not trust this will last forever. They will stop my benefits i feel it and i rather be prepared before it happens. Anyway. I will feel better once they call me. But will not be safe until i see the amount i will end up g everything. and i might never feel safe.

  • Catherine21
    Catherine21 Posts: 7,282 Championing

    I feel so low since labour came in my whole world feels different trust Me was great before but never felt such darkness and hate my daughter is mixed race and she says you will never understand hiw it feels to be hated by certain groups of people I feel all everybody in society has been put in groups banded and the hate coming for disabled is so overwhelming and I believe all caused by labour my heart always felt for my daughter that people judge and hate and always always worried for her especially if reform get in and now starting to feel that feeling I desperately want to get out of this system my mum says if you want something bad enough you will honestly I'm just not capable I will last a week or so then I completely break oh so many things go against me wondering around with dark cloud so so unhappy the anxiety eating away at me I look perfectly fine and mask so well starting to think people talking about me living on benefits is soul destroying

  • Schildpad
    Schildpad Online Community Member Posts: 370 Empowering

    @Catherine21 i understand you very well.. it is soul destroying and living in fear is a terrible feeling.. i also feel guilty about it about being in benefits.. it is awful.. I need to try to go back in track with my life. I feel this will not last forever.. i do not trust any politicians now… they all betray their people. But i feel i will need to do something even if it is from home on a computer etc… i will have to learn to deal with many things… it is very scary.. but depending on benefits it is even scarier. anyway…. try to find something i could do with my disabilities. But getting old and it gets harder and harder as the time passes. i do not know what to do. I really would like to be able to do something.. but system might force me. i am really… who will hire me.. i can not see it possible. i am very unsuitable for anything.

  • Schildpad
    Schildpad Online Community Member Posts: 370 Empowering

    nobody is calling me… that phone called should have been at 1.50 pm … it is now 15.25.

    will the call later or i have to assume they will not call today. it is appalling they did not call, making me feel anxious .. anyway.. if only a big price in the lottery or any other game. and stop all this… i feel only way out is a big price in the lottery and cut all the benefits. But it is unlikely…..

    did they forget to call or just they did not need to… i am furious…… it is Tuesday so i have no commitments. But I am very angry.. i will be furious if they say i have not pick up the phone.. i hope not. i am here with the phone on my lap. so so angry…