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Chronic Pain

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Diligent500
Diligent500 Community member Posts: 20 Listener
edited August 2017 in Chronic pain and pain management
Hi to all,

I have been in Chronic Pain since i had my 5th Child i was happy with 4 children but hubby decided otherwise i am unhappy on lots of meds for
Horrible Paim in hips back knees shoulders fingers ect i cannot loose weight ive tried losdz of times am supposed to be on insulin but making my joints really sore bk to docs next week i am constantly tired ect
I was born very premature hence all the above problems would like to speak to someone in the same situation if at all possible.

Diligent500.
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  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,671 Disability Gamechanger
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    Hi @Diligent500 I am sorry I havent see this post sooner.

    Have you ever spoke to a specialised pain team? You can be referred to them to find something that works for you.

    There are around 300 pain clinics in the UK. Most are in hospitals and have teams of staff from different medical areas, including occupational therapists, psychologists, doctors, nurses and physiotherapists. They all work together to help people with pain.

    Pain clinics vary but usually offer a variety of treatments aimed at relieving long term pain, such as painkilling drugs; injections; hypnotherapy and acupuncture.

    You will need to be referred to a pain clinic by your GP or hospital consultant.


    Scope
    Senior online community officer
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  • cathie
    cathie Community member Posts: 143 Courageous
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    Everything apart from  the insulin bit.you were describing my exact issues in fact for a second thought I may have written this . But if undergone all of the above treatments  years later it apears  no respite from thumbing pains like drums  constantly beating  throbbing biting pains  mobility is a defo No No  every step is  murdering  my soul. Is nothing else can be done scared stiff of being faced with trying any more spine  numbing nerve  injections every procedure  more damaging than the last .   Put it to one side haha .Is this what people can do ..luckier than I takes over every Inc of my mind body and soul ..  
    Only me .. cathie..
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  • Diligent500
    Diligent500 Community member Posts: 20 Listener
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    Hi Sam I already go to the pain team @ chesterfield hosp all they do is inject my back for facet joint problems it didn't help my pain in my hip @all and didn't last long enough only a few weeks @ the most and if I move funny it just makes my back n hip worse am waiting to go to physio but it's taking forever.

    Diligent500.l
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  • Rockchic32
    Rockchic32 Community member Posts: 1 Listener
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    I went to the pain management course at St Thomas in Westminster, they can't fix your pain but they can help take steps to change your mentality about it. I was doing really well for about 6mths after until I hurt myself pretty badly and couldn't move for 3wks. I had a massive back slide but I'd made some great friends on the course who support me and talk me through the bad times and I stay in touch regularly with the team who taught us and they are very supportive and helpful. It's important to have a good GP and a good relationship with them, as they will be a great help. And don't forget to talk about what you are feeling, it is OK to say no because you are in pain, your not letting anyone down and pushing yourself too far doesn't help in the long run, I have a few hours every afternoon to lay in bed, it's not about sleeping, I call it a reboot, but it doesn't matter if it is an hour or four, whatever you can get to feel a bit better. 
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  • Blackspike
    Blackspike Community member Posts: 1 Listener
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    Hi, I also went to St Thomas' the most brilliant programme ever and the NHS's best kept secret! I had been searching for answers and pain relief for 4yrs when my pain consultant after performing many other procedures said ok let's try this the INPUT programme. I was very sceptical and after various assessments I joined in 2011 it seriously changed my life! Being able to speak to others in the same boat without feeling like you're moaning was massive, learning acceptance and mindfulness, drug reviews and supporting each other was amazing for me. I'm still in touch with friends I met there and we still talk about our time at St Thomas's. It's 4 weeks residential (you go home for the weekend) of course I'm still in pain every day but cope better and recovery from flare ups is quicker.  It costs a fortune to run the programme but the benefits are invaluable and it pays for itself in the end by less trips to the GP less drugs etc I would highly recommend to anyone who suffers debilitating chronic pain conditions. 
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