PIP Renewal Result...just went from top level to zero.

VadaLoca
VadaLoca Online Community Member Posts: 9 Connected

Hi everyone,

I had my pip renewal assessment with Serco back in February after around 5 years on the higher level(extended due to covid). The assessor was very friendly, but I was disconcerted by the fact the assessment only lasted like 20 minutes, and be spent half of that asking about my gender care(I'm transgender, medically transitioning). When my mum tried to speak up on my behalf he cut her off.

It's been a long agonising 7 months but I just got my result today and I'm shocked to see that I've not been given anything. They've basically said because I drive a manual car and am self employed, that it proves I can do everything that I'm claiming I can't do(i only can work a few hours a week and dont even earn enough to get taxed). They've also said a few things that just straight up aren't true, like me having no learning difficulties despite having an ADHD diagnosis, and not needing any supplements(I get several prescribed and told them this). Not that it matters in the grand scheme of things, they've also used my old title and name despite informing them I now legally go by a different name several times.

I'm honestly shocked and feel betrayed by the system. I sent them like 30 medical documents and it feels like theyve not even bothered to read any of them. I'm not sure how I'm going to survive financially to be honest. I wish I'd recorded the assessment but I forgot.

I'm going to get in touch with Possibility People, but can't talk to them until Tuesday. I know I'm going to have to do an MR, but I just wanted to know how long people have found these taking? I'm worried I'm going to end up without any PIP for a year or two. Genuinely don't know what im going to do.

Comments

  • Rosie_Scope
    Rosie_Scope Posts: 8,128 Scope Online Community Coordinator

    Hi @VadaLoca, welcome to the community. That's incredibly frustrating, I'm really sorry to hear this has happened to you.

    It's good that you're getting some help from Possibility People, I hope they're able to offer some advice and guidance.

    The timescales can vary from case to case so it's difficult to say how long it'll take. It's often a few weeks before you hear back for an MR, but I hope some of our members will be able to let you know how theirs went so you can get an idea. Sorry that I can't be more helpful on that one, but I just wanted to pop in to say hello and welcome anyway ☺️

    Fingers crossed that you're not waiting too long for a better result. It's a really rough system sometimes but a lot of our members have been through it so you're not alone in what you're going through.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing

    Just so your aware ADHD isn't a learning diffuculty. Having a learning diffuculty is a completley different diagnosis. ADHD is a developmental condition just like autism is, and is seperate from having a learning difficulty.

    Also having lots of medical documents don't help with PIP. Yes it shows you have a diagnosis, but it doesn't show how your conditions affect you. (Which is what pip is looking at). The best overall evidence for PIP is real world examples on how things affect you, and written witness statements from anyone who witnessed you doing them and what the consquences were when you tried.

  • OverlyAnxious
    OverlyAnxious Online Community Member Posts: 5,805 Championing

    MR results are generally reasonably quick, few weeks to a few months. But if you have to go onto tribunal that's when the whole process can end up taking more than a year. I would say 2 years is very unlikely at the moment though.

  • VadaLoca
    VadaLoca Online Community Member Posts: 9 Connected

    Thank you for the replies everyone.

    In regards to this...a couple of my medical documents say how my symptoms are affecting me and what I'm struggling with. Would they not consider those?

  • VadaLoca
    VadaLoca Online Community Member Posts: 9 Connected

    Not really sure how to handle it because I'm aware they are only interested in symptoms, but then I've told them what my symptoms are and how they affect me and they've basically said they see no evidence for it, but I've submitted so much evidence for diagnosis

  • OverlyAnxious
    OverlyAnxious Online Community Member Posts: 5,805 Championing

    Unfortunately you've been refused for the standard copy & paste reasons that lazy assessors use…driving a manual car and working a paid job!

    So it is not necessarily anything that you've done wrong with regards to evidence. The best type of evidence is real world examples from when you've attempted the tasks for each descriptor.

    Your Mum could also write a statement from her point of view, confirming how she has to help you, and again putting real world examples of when she helped you.

  • VadaLoca
    VadaLoca Online Community Member Posts: 9 Connected

    Okay, thank you for this. Frustratingly, she did try to say these things during my assessment as I asked for her to be there, but they shut her down and basically said I needed to answer. I so wish I'd recorded it. Is it usual for assessments to only last 20 minutes? It felt very rushed

  • OverlyAnxious
    OverlyAnxious Online Community Member Posts: 5,805 Championing

    20 minutes is at the low end. Most are around 30-60 minutes. Although a long assessment is no guarantee of a PIP award either.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing

    Some medical evidence says how your symtoms are affecting you, however it doesn't tell them how your symtoms affect you when you try a certain descriptor. Most medical evidence for this reason is useless and most of the time is not even considered by assessors.

    The best overall evidence for PIP is ideally writing an A4 sheet for each descriptor detailing what happens when you try it, and what the consquences were when you attempted it. Also having witness statements of anyone who has helped you or say your struggle when you tried to do the activity. You need to write clear real world examples of what happens when you attempt a descriptor.

    Also diagnosis isn't evidence for PIP.

  • VadaLoca
    VadaLoca Online Community Member Posts: 9 Connected

    Okay this is really helpful, thank you. I did tell them in my paper form all this stuff about how it affects me but it feels like they've not referred to it at all and just gone off the phone assessment which was very brief

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing

    They tend to briefly look through your application before the telephone appointment, but most of the time they have already made up their decision before they phone and just ask certain questions to clarify their thinking.

    If you do what were suggesting above, and do an a4 sheet of paper full of details on how things affect you, and witness statements its hard for them to oppose and most of the time if you have enough evidence they don't even call you.

    I have paper assessments and no phone calls each time now, and they just go of the statements and evidence I send them.

    I forgot to mention as well, make sure you write your name and NI Number on each paper and I sign them.

    The next stage is an MR, don't phone pip and request an MR. You should do this in writing and follow the steps above and send your own evidence and witness statements. There is no guarentee that if you do a MR on the phone that the person writes down all the information and evidence you give them.

  • VadaLoca
    VadaLoca Online Community Member Posts: 9 Connected

    Thank you Rubin, this has all been really great advice. Hopefully I can get somewhere with the MR. I expected to get dropped down to the lower level but I never dreamt I'd have it taken from me completely. The whole process has been awful and it's felt like they've just been accusing me of lying. I mean, I have an emotional support dog to help with anxiety, and I said she was a rescue, which she is, and they turned around and said she wasn't a support dog as I'd already admitted she was a rescue dog. Like some weird 'gotcha' moment.

  • rubin16
    rubin16 Scope Member Posts: 1,447 Championing

    Emotional support animals arn't really recognised in the UK, But I do agree they tend to try catch you out alot. Its like their training is based on thinking everyone is lying or putting it on and you get bonus points for catching someone out or removing an award from someone.

    The whole benefit system at the moment is messed up. Originally it took me 5/6 years to eventually get the courage to apply for PIP as the stress of it all, the horror stories and assessments put me off. At this rate they might as well hook everyone up to a lie detector test while someone shouts questions at you. It was one of the most stressful and still is one of the most stressful things in my life.

  • VadaLoca
    VadaLoca Online Community Member Posts: 9 Connected

    It's honestly been horrible, and the most frustrating thing of it all is that I've tried so hard to stay off other benefits because I didn't want to be a burden. I set up my own business from home so I didn't have to rely on other benefits, and yet now that's being used against me as a reason for why i don't need PIP. Feels like a lose lose situation

  • MW123
    MW123 Scope Member Posts: 2,052 Championing

    @VadaLoca

    That’s such brilliant news, and I’m really glad your MR was looked at properly and everything has been reinstated. I do hope the Serco assessor is spoken to about this, because you should never have been put through all that distress over the last few months. It’s also really encouraging to hear a positive MR outcome, your experience will give others who are waiting a bit of hope.

  • Mary_Scope
    Mary_Scope Posts: 4,241 Scope Online Community Children and Family Specialists

    Excellent news @VadaLoca! This must feel like such a relief and a massive weight lifted of your shoulders, thank you for the update and sharing good news!

  • Anniebeau
    Anniebeau Online Community Member Posts: 26 Contributor

    that’s wonderful news! Really pleased you got the award you deserved in the end. It’s worth fighting back!

  • onebigvoice
    onebigvoice Scope Member Posts: 994 Connected

    Hi VadaLoca, first of all I would like to thank you for coming to SCOPE and being able to talk about your experiences, since most here can only sympertise with you, probably have gone through a similar experience.

    I was about to make a comment as to your post as I do read the responses to every post since in order to go forward as a Team and as a member of Scope like you joining 'our gang' it only reitterates our fight to get benefits back when they are denighed by either the assessment provider or the Decision Maker who has the final say as to what is done to your file.

    Responses are varied here and are in good faith of their own experiences of the system, but others like admin and the group they form to fight benefits on your behalf is not just about one case but the Recodnition that Long tertm and Neurodiversant people have when one system says you are sick or disabled and another system say you are not and force you to jump through hoops in order to get benefits nyou are entitled to.

    I have been with Scope for many years and have also fought battles with the system as a Claimant, a Representative, and as an appointtee. ALL, different hats but with the same objective to get a fair assessment for the claim for benefits.

    If the NHS and their staff which include Doctors, Nurses, Admin, Physeotherepy, scans and Xrays, surgeons, and the list grows as I write including the cleaning staff and the canteen Staff can run under the contracts laid out in the NHS contracts which allow allm staff to be registered on a British Medical Register (under NMC, Doctors or professional Helath professionals) and lets be fair each of the people the NHS use has a skill, and it would not be very professional if you used the toilets in the hospital and it would be safer to go out side and dig a hole in the ground that use the toilet seats.

    With this safe gaurd why have we allowed private Medical Care to remove people from the NHS Register and jump the queue for Operations when the original diagnosis came from the NHS, who by the way when going abroad and having an operation because you can, would allow you to rectify the operation on the very NHS list you were taken off and allowed to go private?

    My point: Passed in the Senedd in Wales was the 2107 Mental Health Act, that is now being questioned in the Senedd in Wales as to the reason why Decision Makers like the one you had do not supply the correct supporting documents to support the claim for refusal. It also applies to the ASSESSMENT PROVIDERS and there are strict rules as to the use of CANDOUR.

    You do not need to know the legal side of all the jargon used, but I would love to know the decision maker in the first instance, and also the one that reinstated your claim and to know whether she has sent you a hard copy of the reason for the changes, and the dates they will start from including the end date, if there is one. Since under this ruling which has been changed over the many years they can still give a life time certificate but will state ONLY FOR ADMIN PURPOSES WILL YOU BE CONTACTED TO MAKE SURE YOU ARE STILL GETTING THE CORRECT LEVEL OF PAYMENTS. It is not to reassess you unless within that time a new cancer drug has been found to treat you and in a trial if you use it and it give the all clear, the benefit may change slightly because depending on the affects to the system may still require support or treatment.

    As information to all the system of assessment has not changed, what has changed is the ADMIMISTRATION OF THE ASSESSMENT AND THE FINDINGS. My advice to all is send in your support letters and any treatment you have had or will get from your doctors and nurses which is on HEADED PAPER, and you medical history to follow once the Decision Maker or any one he hires can prove that they are aloso registered on a British medical register, AND THAT THE ASSESSOR IS A PRACTICING MEDICAL PRACTITIONER ON THE DAY OF THE ASSESSMENT. That is what the LAW States. The reluctance of people toask either the assessor or the decision maker questions makes me at a loss. As for not allowing someone to speak on your behalf, is also incorrect as it states this at the form filling stages and at the charters and acts set out in LAW.

    The second assessor has done the correct thing since medical evidence on headed paper always gazumps an opinion because that is what they are giving unsupported.

    Contact admin if and when you actuall receive your decision letter to maken sure that the evidence you supplied and the reason for the changes are shown, for future reference. Verbal confirmation is not worth the paper it written on.

  • VadaLoca
    VadaLoca Online Community Member Posts: 9 Connected

    So I've not actually had any paper physical confirmation yet, just the phone call to say she'd looked at it and would be reinstating my points. I got my backpayment around a week after the phone call, and then my payment for February a couple days after that. She told me I'd recieve a letter but I just figured their admin is quite slow. I know there was a delay in review of my MR due to bad admin...I didn't hear anything for 6 weeks and so after a couple months called DWP up and they said no one had looked at it due to it "not bring registered". They fast tracked it in the end to make up for it.

    I can't actually remember the name of the person that did my assessment...I just remember they were from Serco and sounded male. Serco were awful from the start to be honest. They initially gave me an in person appointment at 8:30 in the morning at some center an hour from me and I asked for a phone assessment due to my limitations, and for a later time in the day due to my chronic fatigue and it taking me a while for my brain to get going in the morning, and they refused to change the time. The assessment itself only lasted 17 minutes and half of that was spent asking me about something unrelated. I think they asked like questions. I dont even think he looked at my medical evidence that i submitted, as in my report he said there was no evidence for anything I was saying. Wasn't a great experience!

    When I submitted the MR I (re)submitted all my medical documents on headed paper as you've mentioned, and also submitted a couple of witness statements from friends. Someone called Adam at Possibility People helped me and I must say he was brilliant. He advised me to put a big emphasis on the 50% rule and to make sure it was clear that if I was able to do something, like driving, then it was only for 50% of the time unaffected by my disabilities. That was something I didn't do in my initial PIP renewal form, so maybe that was the difference.

    I'll update here when I get the physical letter! Hopefully it won't be long. She told me I'd be getting it for 3 years.