Storke or damaged nerve.s .. answers ..
Options
cathie
Community member Posts: 143 Courageous
I would love to know if anyone could possibly have any input in to my experience . .felt strange in my tummy I think can't say just yuck went to bed ..in the morning woke got legs off bed collapsed to floor tried again same thing legs had no feeling or ability to perform a simple task arms were same left one funny position long short 13 or so weeks later still no change numb from waist .can think talk perfect but looked and felt like stroke victim . Couldn't get g.p to come to me I couldn't get there ..still no scan .. forgetfulness still an issue .. told lots of professionals ..no g.p record .so doesn't really count.. as if never took place it clearly worries me then and still one and half years later ..still concerns me may just happen again
Only me .. cathie..
Comments
-
Welcome @Cathie Firstly Cathie for what information that as been given it is not clear for me to say too much. You have by the sounds of it had a worrying experience. When you say the GP would not come out this is in my case with uncontrolled feelings of legs should have come out. The way you have put the variety of issues could be a multi concerns and if that was the case for refusal tell them to phone you a ambulance. Some symptoms come to mind but don't quote me on this unless I had seen your bloods. Bloods should first be taken to eliminate virus or other serious illness. You may have had a mild stroke , we have many areas. Insist if a GP can not come out ask for a ambulance from them, this is your right.
-
Hi @cathie, how are you today? Did you manage to speak to/see a medical professional yesterday?
-
hey really grateful you took the time to not only read but also answer my moments of screaming it from roof tops to be honest so many factors to this the g,p was a lo com claims not to fully understand my 15 year old child no record of my neighbour going back next day to see why g,p has,not arrived was told she would i d only moved weeks before from a bad situation knew no one had no phone had e,s,a stopped for long time by j,w,p, had no cash daughter was scared so told the neighbour id never even said hi to in passing thirteen weeks later when was able to get a lift ,,and hold my self up long enough i went to g,p had a bit of a cross word was sent to a@e nerve damage in spine and pain and discomfort , i was unable to wait there for six hours nurse said go back request gps letter to go directly into scan ,,, as i was in tears at this point ,, promised he would went on hols without doing so had a ding dong with yet another locom that claims she could not help it was nothing to do with her after a very upset me done paper work i was offered a scan over a year later told many other folk understood my 15 year old first time ,,, made formal complaints thrown off doctors list made quite a fuss with practice manager who reinstated me ,, false reports made after all my data was lost no records never seen that g,p again ,, if i had not lived this i would think no way ,, this does not happen in 2017 ,, letters of complaints answered received in report from her ,, wow places i was never appointed to turned up as n,a, gave her lots of info on places i had been ie walk in centre a+e could not be traced by her i called up in five mins google and requested they sent her the information ,, have not heard from her since ,, oh i could go on but boring my self now never mind you ,,,, but every word is true ,,so no record of still unsure of what happened but so scared will happen again ,,,, im far from loud abusive by the way ten years at surgery never raised an eye brow let a lone my vocal cords appears swept under the carpet im knackered everything is a fight no fight left see wot take s place ,,,wow a novel sorryOnly me .. cathie..
-
oh one other part to story keep falling over still cant do simple tasks never had issues with memory still has nt returned long and short fell woke up taken to a+e once again had serious issues heart rate and pulse rate over 120 sent email to g,p five weeks later at an appointment asked him about the email said no nothing sent here i said oh yes found it opened it ,,five weeks mind you tacaiya something or the other concerns expressed by yet another a.e department still nothing said to me or taken any step upped my bp meds ,, said very concerned about your health is this what should have happened or should the dizzy ness passing out cray flashing light in my eyes almost daily heart tight hurts been investigated not sure neck pains complaint after complaint never get any further than xray said a thousand times not bone history quadruple by pass brother this year five sibling heart attacks father uncles dead heart attacks one to many little sis recent heart failure stent my heart murmur and i reading to much into this now not even sure ,,,,, he sent me a and e 2012 for heart worries had injections in tummy all night .. no known records any way not sure why but assumed you were from the medical department please forgive me if mistaken ,,,i m sure you would have be down as a little coccooo if not ,,but no the mental health issues are not one i suffer ,, one good thing ah sane im afraid ,,,lol you possibly are questioning that right now lol but honestly reports to prove it
Only me .. cathie.. -
Hi @cathie, thank you for sharing this with us and I'm so sorry that you've had such an ordeal with accessing the right medical care.
Scope are a disability charity rather than medical professionals and therefore cannot advise you on your medical care: if you have concerns about your health, always see a GP. If there are issues you have with your GP, you are always entitled to a second opinion.
What we can do is listen to you and support you as best as we can, so don't feel like you have to apologise for what you've shared. As I'm sure you've seen, there are also a lot of friendly members on the Online Community who you can chat to as well! -
hi it would seem there a long line of very angry frustrated patient,s im just one to say ok lets move on try best to correct things and forget it even thou information that s on a report offered by the practise manager has come from goodness knows where it appears been made up and the correct information of treatment and location if almost six months seem s to have vanished no idea where this info on a hospital i was never under came from ,,strange answer given via practise manager when asked again and again about my missing files , was simply thousands of files go missing after under going some sort of shape up not sure who they are ,, a more timed appointment has been put in place doctors trying harder , a question form pf performance is given to fill out ,, as said hospital sent email to gp five weeks later i had to tell him said mp at first but found and opened it was about concerns about my heart ,, g p put b.p meds up took wee sample found blood in it sent for tests im very concerned about your health trying to get an appointment since like gold dust no more will be mentioned so not even sure if email sent was for him to act on but he has not pains in heart tight sweats pulse rate explosive in my head and chest thought might of been having fits as wake up having injury s after joining some dots my self fainting is a sure sign all makes more sense to me flashing lights reg from no where left arm pain pins and needle s mainly left hand cant feel i have dropped things from right hand cramps feet hands neck complaints of stiffness for years and cramps s cary ones forgetful beyond normal all at some point been either spoken about or investigated no follow up turns out he sent me for cancer tests found i have prolapse bladder may be reason iv neen telling him i have major issues getting worse recall appointment few years ago to see if bladder fully empty sent back to g p nothing more done as with many things practise manager wrote its not g,p,s fault if you don t follow things up also missing every appointment getting thrown of list s asked for reported issues due to known pain mobility problems in report said its not your g. p s duty to sort this matter out for you ur mobility needs are down to your self told them every weeks benefit stopped car taken no mean s of getting to appointments ,, please tell me if im crazy or is this wrongly treated once again wow novel every time not to hold any one to word just in option sake thanks
...
Only me .. cathie.. -
The user and all related content has been deleted.
-
I can understand how u feel this is my 2nd stroke first one I didn't no about but 2nd one was worse I lost all my left side of my body but slowly gettin the feelin bck can walk with a limp but it hurts a lot but get tired
-
I can understand how u feel this is my 2nd stroke first one I didn't no about but 2nd one was worse I lost all my left side of my body but slowly gettin the feelin bck can walk with a limp but it hurts a lot but get tired more easy now plus my memory is not that clever I have had to buy a diary to jot things down n wen I go outside get really bad get headaches n feel really sick till I get home
-
Sorry to hear that I can now say .one was stroke was also having I t.a.didnt know wot they were gone on to have major Stoke 9o per cent blockage in vascular vain emergency ..feel very let down y g.p.could have prevented second one I wasn't being listened to dots weren't joined g.p requested twice failed to show but was told no you haven't has stroke nerve damage is the problem told five g.ps still not written about it trying to get info from them need to take it further but left with issues and memory problems it's just to much for me not sure how to go about getting some acceptance for failures or admittance they messed up but no answers..veey frustrating ..Only me .. cathie..
-
Sorry to hear that 8th December last time I went out or got dressed worried if cased such a big fear in my mind I'm gonna find it hard to face the world in this state jotting book great idea ..but I lost the book twice took weeks to come across it lol gotta laugh ...Only me .. cathie..
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 777 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 825 Rare, invisible, and undiagnosed conditions