🚨 Your voice is needed: Timms Review on PIP reform

Most of us work better with colour highlights

I took would like to have clearer forms. Having PTSD is very hard at the best of times but filling in forms is as hard as anything I have to deal with daily more so with pip/government forms. Making them more user friendly would certainly help me.

Having made the initial claim and 1 renewal I was extremely anxious and having to wait for so long and not being able to chase up the claim add to the stress. So maybe a better system to keep claimants better informed through the claim and renewals would certainly benefit me.

It's about time the government took notice and listen to disabled people and how hard it is to get PIP, it's like a miracle if you can get the form filled out because it's completely different to any other form I have seen in my life. Forms need to be simplified so every disabled person can get what they need. Life is hard as it is and having cost of living to try to get just the necessary things and bills, the government needs to support us properly instead of voting to get a pay rise for themselves, what about us, care workers who are unpaid and work tirelessly all of this is disgusting this country is a laughing stock around the world, other countries don't send money abroad for other countries before helping their own, it's about time your countrymen are seen first and not last. Our elders fought and died so we were free and it's disgraceful to them and us now.

It is very triggering and inpacting on our mental health anyone who hasnt gone through this would never understand the fear and anxiety but remember this shall pass you done your part its the waiting hopefully you hear soon

"I am responding to the review of Personal Independence Payment (PIP) to share my experience as someone whose condition has worsened over time.

I have lived with mobility problems since around 1990, and in recent years my movement has deteriorated further. I also have arthritis and bicep tendonitis, which affect my ability to carry out everyday tasks and move around safely and reliably.

PIP is essential for me because living with these conditions brings extra costs that non-disabled people do not face. These include increased difficulty with mobility, pain management, and the need for support with daily activities. The financial support is not a luxury—it helps me maintain a basic quality of life.

However, the assessment process does not always reflect the reality of living with long-term and worsening conditions. My experience is that it can feel stressful and does not always fully capture how my condition affects me day to day, especially as symptoms can vary and worsen over time.

A key issue is that conditions like mine are long-term and degenerative, yet the system often treats them as if they might improve. Reassessments can create unnecessary anxiety and uncertainty, even when there is clear evidence that the condition is not going to get better.

I believe the system should:

• Better recognise long-term and worsening conditions without repeated reassessments
• Take more account of how pain, fatigue, and limited mobility affect daily life over time
• Be less confrontational and more based on trust and medical evidence
• Ensure that assessors have a proper understanding of fluctuating and degenerative conditions

PIP exists because disability increases the cost of living. This principle must remain at the heart of any reforms. Without this support, people like me would struggle to manage basic day-to-day life.

I hope this review leads to a system that is fairer, more understanding, and built around the real experiences of disabled people."

is what I sent……