Spinal stenosis group chat

reading earlier posts this condition is not a one size fits all. My right leg is most affected. I had the awful pains shooting down legs. The horrible electric shocks that had my leg shooting out.That has passed but very weak in that leg .I've fallen once in the garden, 😪what a struggle to get back on my feet. I’ve lost confidence now with walking outside. My other leg has started with pins and needles and I get hot feeling in the leg as if a hot pan had been put on. Sadly it’s started in my neck now with pains down arms. I had to fight to get codeine though no good really. I’m phoning doc tomorrow as I’ve read some of you have had steroid treatment, the injections in my back only worked for 5 weeks. Do any of my fellow sufferers take steroid tablets .? Thanks for listening

Good morning everybody. (tryingtosmile)

There seems to be different links to read and find reply to posts about Spinal stenosis, but I am navigating to find out as many as I can.

Hopefully the "group" will increase . We all need to chat as there is little help out there . GP's don't really understand the pain. Self help is what we are all doing.

I am plodding on. I do as much as I can to calm the "constant ache". Today is a bit different as I was sitting comfortable(ha ha ) when my right leg started to ""twitch"" , cant describe it as its a new sensation. It started a few days ago, so monitoring it. I wish there was a specific unit , we all talk of the same symptoms but only get offered a variety of drugs but without one specific common treatment. I haven't researched finding a physio who specifically treats this odd condition. It needs to be speciffic exercises that wont make it worse.

Letter from my consultant was very "kind" and in the last paragraph he wished me luck. Will keep my file open under his remit for 2 years but I have no idea what happens after that. Wont offer surgery at this stage , so I am grateful for that.

I am 72 and trying hard not to cave into a bit of depression, just on down days, as I am still doing very well, Walk out everyday, when possible. Short walks then a sit down either in a cafe or the park bench. It really is something to try as often as possible.

Wednesday was a glorious warm day , Got out for a walk in the sunshine, however it didn't last and today its freezing, cold icy wind. I get very tired and feel the cold more now than I ever did. (but wonder if this is part of long covid !! or a side effect of Lumber stenosis). I take a multitude of vitamins. D, B12, Zinc, Vit c, calcium, cod liver oil and omega3. I'll try anything , all trying to support cartelidge , and muscles and mental health.. I watch everyone when I am out, and as more aware of lumber pain, often want to stop people who seem to be either bent over or using walking sticks to aks them if they are diagnosed lumber stenoisis sufferers.

To hedgehoggirl I haven't been offered any pain management from my GP, the consultant said I was doing more myself than he could offer. I use a hot/warm hot water bottle in a morning to warm up and open the blood flow (in my lower back) and an ice pack before bed to shut down the nerves. My neck ache/stenosis pain has just started. Possible spondylosis or could it be another form of stenosis. I guess I will have to again monitor and if it gets worse try get my GP to refer me for an MRI. I use panadol advance 500mg x2 as it gets into the system quicker than ordinary, plus ibruprofen

Hope for some warm weather . Hard to accept that there is no cure, for my diagnosis. Just learn to live with it. Good luck once again to everybody. I don't get any replies so I guess I must be using the wrong links within Scope , xx

Sad to say I have found more info online than doctors.It confirmed that fatigue is a big part of LSS.Both mentally and physically. Explains how nerve damage causes weak muscles.