DLA transfer to pip

diceman24
diceman24 Community Member Posts: 10 Listener
in PIP, DLA, ADP & AA

hello I suffer from congenital progressive muscular dystrophy I’m 60 years old and still on dla HR for both components. My condition affects me so much 65/70% of time I’m bed bound due to extreme fatigue. When I transfer to pip which will be soon how can I get pip benefit if I’m mostly bed bound. My mum cooks my meals and helps me with home physio (light) movements for muscles twice a day and my brother washes me but any ideals how to explain my situation on the dreaded pip form any advise would help me thank you also I have neurological consultant letter explaining my condition and everyday help I need

Comments

  • MrHappy2
    MrHappy2 Community Member Posts: 40 Contributor

    Unfortunately i haven't got any tips or advice for you @diceman24 because some months ago when i was forced over to PIP i found the whole process utterly confusing and upsetting. All i can do is wish you well and hope that its a problem free speedy transition for you.

  • Mary_Scope
    Mary_Scope Posts: 5,484 Scope Online Community Children and Family Specialists

    Hi @diceman24

    When filling out the form, make sure you write down the exact help your family gives you every day, why you need that help and why doing these tasks on your own just isn't possible.

    It's really good you have that letter from your neurological consultant. Do you have any other extra medical notes, care plans or letters that show your daily care needs? I always think it's best to include as many relevant medical documents as possible because every little piece of evidence helps build a strong case.

    It's also good to focus on the Pip descriptors when filling out the form as this the best way to show them exactly what your day to day life looks like😊

  • diceman24
    diceman24 Community Member Posts: 10 Listener

    thank you for your brilliant advice yes I’ve got doctors letter stating my muscular dystrophy condition and I need help on everyday tasks from my mum and brother also diagnosed letter from when I was under great ormond street children’s hospital when I was alit younger . Is it worth getting my mum and brother to write a letter for nevstating how they help me in everyday tasks any advice would be helpful thank you

  • Mary_Scope
    Mary_Scope Posts: 5,484 Scope Online Community Children and Family Specialists

    Not a problem @diceman24, I'm glad it was helpful!

    Yes, absolutely! I can't see the harm in them writing a letter as evidence too.

    Just keep in mind that while a letter from your family is good supporting evidence, you still need to fill out every question on the PIP form thoroughly yourself. The form is your main chance to explain what they do for you, why you need that help and what would happen if they weren't there to help😊.

  • diceman24
    diceman24 Community Member Posts: 10 Listener

    thank you for your feedback and response so quickly and reassurance for me

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