Reporting improvements

rwoolcott
rwoolcott Community Member Posts: 4 Listener
in Benefits and income

My conditions are erratic and volatile but my mobility as improved over the last few weeks what should I do i have heard its a good idea to do a 3 month stable reliability monitoring first is a before informing the dwp. I have anklelosing spondylitis and it can flare up at any point

Comments

  • Emilee
    Emilee Community Member Posts: 145 Empowering

    If you've only had the improvement for a couple of weeks and it is a condition that fluctuates anyway, it would be worth waiting at least a few more weeks and up to 3 months before reporting a change. Remember it is about how you are the majority of the time too.

  • Rachel_Scope
    Rachel_Scope Posts: 4,887 Online Community Team

    Hi @rwoolcott and welcome to the community. I agree with Emilee and think you should wait before contacting them. If you report an improvement but then your condition becomes worse again it could cause issues with what they decide to award you.

  • rwoolcott
    rwoolcott Community Member Posts: 4 Listener

    The issue i have is in May I reported a improvement in circumstances going from 0-20 to 20-50 metres in mobility but as the medication and targeted pyshio as kicked in my walking as improved further my mobility as always been erratic. Also on my pip review forms I said need for full time carer but now she's down to 2 days she's cancelled her carers allowance how's this going to look when the assessor asks and I say 2 days

  • Rachel_Scope
    Rachel_Scope Posts: 4,887 Online Community Team

    Thanks for clarifying that. How long has your carer been working just 2 days?

    If you expect your condition to improve and you will only need your carer 2 days a week, then I think it would be best to do a change of circumstances. I just don't want you to do it too soon and then things get worse again.

  • rwoolcott
    rwoolcott Community Member Posts: 4 Listener

    Thankyou Rachel

    September 9th she cancelled it, I did say tho family and friends contribute tho and I have many adaptations on the may forms.

    Do you think my carer will get investigated cause won't they see a contradiction in care from may to September.

    First started seeing this further improvement for around july 20th I monitored tho to see if it was stable and reliable which it as been.

  • rwoolcott
    rwoolcott Community Member Posts: 4 Listener

    Sorry as my condition improved

  • Rachel_Scope
    Rachel_Scope Posts: 4,887 Online Community Team

    I am unable to say if your carer would be investigated or not as it is not something I am familiar with I'm afraid. I would suggest speaking to a trained benefits adviser. You can find one here https://advicefinder.turn2us.org.uk/ . Sorry I'm unable to be more help.

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