Endless trying to find medication that helps

catsarefluffy
catsarefluffy Community Member Posts: 32 Connected
in Everyday life

It's a lose lose. Don't try any feel ill and try a new medicine possibly feel worse.

Feeling awful and I'm running out of options in this drug group. When you're already chronically ill, switching to a totally different type of medication is nerve wracking. Can my body handle it?

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  • yellowpineapple84
    yellowpineapple84 Scope Member Posts: 397 Empowering

    I read this and really wanted to send you warmth :) I don’t know much about medications, particularly for health beyond my own experience. Wanted to send warmth and kindness to you though :) I don’t sleep very well and came across this and wanted to respond. I feel worried too when my doctor recommends different medicines

  • figraspberry41
    figraspberry41 Scope Member Posts: 197 Empowering

    #@Catsarefluffy,

    Hi, I'm not sure if this is 'helpful' to you or not but just wanted you to know that you are not alone in your predicament. I know someone (personally) that is in a similar situation to yourself. The person has long term, chronic conditions, unfortunately, this person has become hypersensitive, allergic or just immune to effects of several medications. It seems that everything that has been prescribed has not been effective or has for a short time and then fizzles out.

    However, I would encourage you to try medications prescribed for you because unless you try them you will never know if they might be successful for you, even for a while. Try to stay positive, even though that is difficult to do; especially when you feel that you not getting the relief you hoped for because it offers a chance that something 'new' may just be the one that benefits you. I hope you find something that helps you soon.

  • MCMikey
    MCMikey Community Member Posts: 67 Empowering

    I have had similar experience. One thing I would say is that if you are on a medication which is working a bit or a lot, and the doctor wants to change you to a new medication (and stop the old one) I would always get a affirmation from your doctor that you can return to the previous medication if things don't work out.

    Sometimes NICE guidelines change and they want everyone on medication X to change the medication Y, regardless of whether medication X works well for some people and medication Y will not agree with them.

  • trytosmile
    trytosmile Community Member Posts: 19 Listener

    I suffer with Lumber Stenosis , lower back pain and got no help from my GP. Learning pain control myself isn't easy. Have been told half the population over 60 has this type of back pain, not many are lucky enough to get a GP to take you seriously and when they do, you need an MRI to confirm it. I have so far not met anyone who has this and so its hard to swop ideas and get relief for the pain that never goes away.

    Lumber Stenosis is degenerative and will get worse. I manage with Ibruprofen as an anti inflammatory and paracetamol for nerve pain switch off. A few yoga stretches when it gets worse.

    I try omega 3, cod liver oil, magnesium and a warm bath, and a walk out everyday, not far.

    I live the best life I can as I know there are a whole lot of people worse off than me.

    Good luck to fellow pain sufferer's . If there ever is a pain relief drug I hope it is found soon without the knock on effects of damaging my liver, kidneys and stomach.

    I am 73 now, so maybe a few years of drugs wont cause too much damage going forward, but I don't like taking any. I use the pain relief only when pain is at its worst and when I know I am going out for the day or evening.

  • JennieWren
    JennieWren Community Member Posts: 92 Empowering

    I think the advice for your gp to confirm that should the new meds not work or have strong side effects you can return to the original meds is excellent. I’ve had back pain since I was about 13 due to scoliosis and the broke my back when I was 16. I’ve had many procedures and meds. My pain specialist changed 2 of my meds. One worked brilliantly, the other worked well but had debilitating side effects. I kept the one that worked well and returned to my original meds with the second. Just ensure you transition as advised.

    All meds can have side effects or cause further issues. You need to weigh up what is most important for you and how long any potential organ damage would take and if the risk is worth it.

  • catsarefluffy
    catsarefluffy Community Member Posts: 32 Connected
    https://forum.scope.org.uk/discussion/comment/1155818#Comment_1155818

    Thank you. Sorry to hear you don't sleep well

  • catsarefluffy
    catsarefluffy Community Member Posts: 32 Connected

    Yeah. 💔 It's a bit of a gamble

  • catsarefluffy
    catsarefluffy Community Member Posts: 32 Connected

    I hope so! I think the original one was better

  • catsarefluffy
    catsarefluffy Community Member Posts: 32 Connected

    Yeah I only take medicines if absolutely necessary due to side effects and other implications. Shame I do have to use as a last resort now. I tend to use traditional Chinese medicine/remedies first before going on meds. @trytosmile

  • catsarefluffy
    catsarefluffy Community Member Posts: 32 Connected

    Mhm. Win some, lose some. :(

    If only it was that easy to not be ill to begin with, hey?

    https://forum.scope.org.uk/discussion/comment/1155887#Comment_1155887

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