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PSP

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marionjanet
marionjanet Community member Posts: 2 Listener
edited February 2018 in Disability rights and campaigning
Hello.
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  • Lasian_Alumni
    Lasian_Alumni Community member Posts: 659 Pioneering
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    Welcome to the community @marionjanet, it's great to have you here!

    Would you like to tell us a little bit about yourself?
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  • Katy_Alumni
    Katy_Alumni Community member Posts: 60 Courageous
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    Welcome @marionjanet :) 
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  • marionjanet
    marionjanet Community member Posts: 2 Listener
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    Ive got PSP cannot walk or speak.
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  • shirleygreen
    shirleygreen Community member Posts: 10 Listener
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    Hi Marion I am sorry but i have no idea what PSP is so please excuse my ignorance but I am interested. 
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  • JennysDad
    JennysDad Community member Posts: 2,299 Disability Gamechanger
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    Hello @marionjanet and welcome to the community.
    My apologies for not responding sooner, but I'm a relative newbie here and am still finding my way around.
    PSP, the web tells me, is Progressive Supranuclear Palsy, and it sounds pretty awful. I am so very sorry you are suffering, and suffering from what is, I understand, a very rare condition.
    Looking for information, I found this, https://www.pspassociation.org.uk/ which may be useful unless you've found it already. I've found nothing specific to PSP here on Scope, but I might not be looking in the right places  :/  And, regardless, I am sure we will have resources here - and friends - that will be of use to you. Take a look at some of the links in the purple band at the bottom of the page and see if some might be useful.
    Whatever else is the case, you are among friends here. Don't hesitate to chat, ask questions or generally keep in touch.
    Warmest best wishes to you.
    Richard
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