Would love to chat with other parents in the CP network.

JaneNicsMum_34 · January 2018

My name is Jane I am Nics mum Nic is 34 years old I Nic was born with Spastic Cerebral Plasy and Epilepsy looking to meet other mums on hear as I need some support and advice with nic's care need changes as he's growing up can anyone help me in this area thank you Nics health has gone down hill recently with his breathing and seizure disorder would love to chat with other parents in the CP network.

Regards

Jane

steve51 · January 2018

Hi @JaneNicsMum_34

Good Morning & Welcome!!!!!

It’s great to meet you today!!!!

I have posted some info below I hope that is ok???

https://community.scope.org.uk/categories/carers-of-disabled-children-and-adults

Can you please let me know if there’s anything else that I can help you with????

JaneNicsMum_34 · January 2018

Dear Steve

Thank you for welcoming me into this group we have battled 34 years with Nic he is a inspiration to us all in so many ways he's a true fighter and a legend

I would like your help Steve please ??

Nic is on lots of medications and it would be great to talk with others that have issues with.....

Drooling
and Bad Breath I wish there was a cure its consent and I have tried all the mouthwashes and toothpastes nothing works

Regards

jane

steve51 · January 2018

Hi @JaneNicsMum_34

That’s ok it’s my pleasure!!!!

Please please leave it with me if that’s ok ????

Thanks.

Pippa_Alumni · January 2018

Hi @JaneNicsMum_34, great to meet you!

You may like to chat with @Abigail, @Rcarter, @staceye83 and @garethbeach who have all discussed caring for children with CP in past discussions.

Jean_OT · January 2018

Hi @JaneNicsMum_34

There are surgical and drug interventions that can be effective in dramatically reducing drooling, see:

https://www.scope.org.uk/support/families/cerebral-palsy/drooling

Obviously not all interventions are suitable for all people so you will probably need a GP referral to a Consultant.

If the cause of 'bad breath' isn't obvious that may also need investigating further as it can be an indication of other health conditions.

Best Wishes

Jean

https://community.scope.org.uk/categories/ask-an-occupational-therapist

Would love to chat with other parents in the CP network.

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