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PIP HELP (EPILEPSY)

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karl87
karl87 Community member Posts: 3 Listener
edited February 2018 in PIP, DLA, and AA
I've just received a letter from the tribunal about my PIP saying that I am not going to be getting daily living because I only got 5 points but I will be getting enhanced mobility got 12 points for that before I had no points on any. I do believe tho that I should be getting some living allowance with that. Is this true do you think an how should or can I go about this??? 
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  • karl87
    karl87 Community member Posts: 3 Listener
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    By the sounds of these comments then I should apply to the upper tribunal about why I haven't got living allowance only scored 5 points needed 8. I dont ever no when a fit is gonna happen so I am a risk at all times weather thats cooking,washing to even sitting down surely I should have a case against it to get the daily living allowance aswell as mobility which they have gave me...
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  • karl87
    karl87 Community member Posts: 3 Listener
    edited February 2018
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    lillybelle said:
    As somebody who is about to go through an assessment next week because of uncontrolled epilepsy and a back injury caused because of a seizure.
    most definitely
    i can not cook, Iron, bath etc at all. I shower and dress with help from my daughter.
       So if you are in the same position as I am in which I’m sure you are,
    then you should easily have scored enough points.
    do you know how they have scored you enhanced mobility?
    do you have trouble walking

    All it says on the letter is " cannot follow the route of a familiar journey without another person, assistance dog or an orientation aid" which scored 12 points on it's own and no I don't have trouble walking inless I've had a fit. Maybe it the risks they have looked at there an not on my daily living allowance which they should have i.e. cooking washing an alot of other things too..
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  • Paul7210
    Paul7210 Community member Posts: 41 Courageous
    edited March 2018
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    Hi @karl87, epilepsy is one of those conditions that vary a great deal from person to person, to get daily living you must require care/support at least 50% of the time, (if you work) you can claim this benefit in or out of work but it will make a difference to the points and how they score you. Mobility is treated differently where they tend to assume you need supervision at all times out of the house due to higher risks i.e falling into the road of oncoming traffic, the supervision rules were changed recently taking into account especially those with uncontrolled epilepsy and those with similar problems, epilepsy action campaigned hard for these changes. My wife has seizures or clusters of seizures most days and requires 24 hour care some of which is provided by adult social care, we had to have two assessments in the home but did get both elements, however she didn't get the points I thought she would get ! how frequent are your seizures @karl87 ?
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  • Paul7210
    Paul7210 Community member Posts: 41 Courageous
    edited March 2018
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    I agree with Mike, as many people are indeed treated poorly, in your situation @lillybelle you would be entitled to a care needs assessment by your local council, this really helps with evidence which is what we did and they may even offer a care package to suite your needs, my wife has severe epilepsy and due to this has impaired memory and is unable to deal with her own affairs and has a poor understanding of things, be aware if you speak to the DWP's especially on a regular basis they will make a note that you can handle your own affairs and you could loose points, I know it might sound daft but this is exactly how our friend was judged, at the assessment centre they even watch you getting out the car they will also write to your neurologist or specialist nurse for updated information on your treatment and the likely hood of you getting better. Good luck 
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  • gemlou
    gemlou Community member Posts: 8 Listener
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    Hi can someone help me, dwp are doing a second reconsider for me and I don't understand why also if they do give me daily living would I get my esa money back to normal and would esa give me backdated money which was cut because I was denied pip thanks
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