Hi, my name is leighboy!

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leighboy
leighboy Online Community Member Posts: 3 Listener
in Start here and say hello!
My daughter is 31 and my wife has been on epilim most of her life and still is,we were never made aware of any dangers with this drug and our son who was born 4 years later is fine. My daughter was born blue and put on oxygen and placed in the special care unit for a few weeks ,she had a small hole in her heart which was fixed a few years later with an umbrella type tool, she also suffers with finger,toes etc deformed and also has learning difficulties,how can her assessed for this condition and are there any groups i can join to try to get compensation for her. thx 

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  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @leighboy

    Good Evening & Welcome.

    It’s great to meet you today.

    Please please let me know if I can help you further with this ????

    “I’m a dab hand on the pc”
  • leighboy
    leighboy Online Community Member Posts: 3 Listener
    Thx :)
  • JennysDad
    JennysDad Online Community Member Posts: 2,290 Championing
    Hello @leighboy and a warm welcome to the community. I suspect that a good place to start might be with the Epilepsy Society at https://www.epilepsysociety.org.uk/ 
    A brief look on the web suggests that the connection between Epilim and birth defects has been known for up to 40 years and I would expect the Epilepsy Society to have a good idea of what is going on and what is available.
    Can you let me know if that helps at all?
    Warmest best wishes,
    Richard
    @JennysDad
  • leighboy
    leighboy Online Community Member Posts: 3 Listener
    Hi thx for the reply ,I'm just trying to get up to date with the position on this ,I understand France have offered some compensation which is a start but the uk are lagging behind, so I guess need some sort of pressure to act.

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