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Fatal valproate syndrome 31 learning disabilities Caring for my cousin please help

Laniya21Laniya21 Member Posts: 1 Listener
Hi guys long story short I’m caring for my cousin
She 31 born with congenital heart disease she has long jaw spine problems deformed hands and feet .. Along with Learning difficulties and behaviour problems. Really been let down by social services.. 
Parents think she has valproate syndrome as both epileptic and took medication through out pregnancy.
Im having a nightmare with family and council when she was statemented giving me her statement.. 
They stop her social worker when she was living in Manchester now in London with me getting real support and care .
I don’t know where to start 


  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @Laniya21, welcome to the community!

    Thanks for sharing this with us. When you say you don't know where to start, is there something in particular you're looking for support with at the moment? Let us know, and we'll do our best to advise.
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