Difficulty standing and not being believed

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joaquim
joaquim Online Community Member Posts: 1 Listener
edited June 2018 in Everyday life
I suffer with copd and degeneration of the spine and find people dont believe me when i say i cant stand for longer than a few seconds. Just wondering whether other people suffer the same.

Comments

  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @joaquim

    Good Morning & Welcome.

    It’s great to meet today.

    Yes I have suffered with “Hidden Disablity’s” since my “Stroke” in “1998”

    Like many of us on our site
    these are extremely difficult to put across.

    Please please let me know know if I can help/support you in anyway???? 
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Hi @joaquim, welcome to the community!

    I'm sure many community members will be able to relate to your experiences. I wonder if you've heard of Stickman Comms? They produce products that aim to help communicate how you're feeling to others, like this hidden mobility keyring. I've used some of their stuff before and it comes in surprisingly handy at times!