Fibromyalgia — Scope | Disability forum
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Fibromyalgia

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Valerie_8
Valerie_8 Community member Posts: 4 Listener
edited June 2018 in Disability rights and campaigning
I would be intesterested to participate in research of this mysterious condition that feels so hard to treat and would like to know if anybody else would be interested to participate as well. 

I have fibromyalgia for 14yrs now, still struggling with it and life as a result.


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  • Valerie_8
    Valerie_8 Community member Posts: 4 Listener
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    I want to understand why and how it happens. As it would help me to accept the situation better.
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  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    edited June 2018
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    Thanks for sharing this with us, @Valerie_8. It may be worth getting in touch with FMA UK to express an interest in participating in research, and you can also find any upcoming clinical trials on this NHS search page.
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  • littleruthie123
    littleruthie123 Community member Posts: 511 Pioneering
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    HI  it's a horrible condition isent it .and very hard too live with .it developed mine after 3 years of treatment for breast cancer .I also have nerve damage and osteoarthritis and fatigue .I don't no if the shock to my body that triggered it off .in Hayes it and it's took so much off me .can't work rarely socialise I miss the old me so much!!
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  • pinkmummy
    pinkmummy Community member Posts: 1 Listener
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    I too have fibro, 22 yrs and counting, I've never really been told much about it by the doctors but have found literature myself, I pace myself as much as I can and have help from a carer. Mine started after I developed sepsis due to a doctors negligence which is then hard to swallow as I feel it should never have happened, now in a wheelchair but can walk a few steps, starting back with part time work after having a bad spell for 3 yrs , I don't think anyone knows why to be honest but if I can help let me know , good luck Valerie 8  xxx
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  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
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    Welcome to the community, @pinkmummy!
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