NICE set to produce guideline for services for adults with Cerebral Palsy

Richard_Scope
Richard_Scope Posts: 3,916 Cerebral Palsy Network
in Cerebral Palsy Network
The document outlines the steps that need to be taken to change the differences in providing social and medical services for adults with Cerebral Palsy and aims to help local and regional services provide clear pathways to social and medical care.

Read the full article here.
NICE set to produce a guideline for services for adults with Cerebral Palsy

Comments

  • niceboots
    niceboots Scope Member Posts: 198 Empowering
    Interesting read... I’d definitely agree with regular reviews. In my case regular physio and orthotics reviews would be invaluable, even if they’re six monthly it would really help. I’m pretty good at self managing my cp, but when I have issues I have to go to the gp and get re-referred. This obviously takes months, so open referrals with regular reviews would be great, and I believe in the long term would save money.
  • Richard_Scope
    Richard_Scope Posts: 3,916 Cerebral Palsy Network
    I agree. It seems like a small step in the right direction and has the potential to save money, as you say.
  • Jean_OT
    Jean_OT Online Community Member Posts: 511 Empowering
    I note that this is draft guidance and out for public consultation until August 28th. Individuals or organisations can comment via: https://www.nice.org.uk/guidance/indevelopment/gid-ng10031/consultation/html-content-2

    I hope they get lots of engagement on this important matter 
  • Stayce
    Stayce Online Community Member, CP Network Posts: 839 Empowering
    Interesting - I have to say I’m less impressed with the drugs for muscle relaxant recommendations as It implies that the drug I am prescribed (due to not tolerating the ‘popular’ others) is not being recommended. So I am probably going to have problems if this goes ahead!

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