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cripps
cripps Online Community Member Posts: 412 Empowering
edited October 2021 in Rare, invisible, & undiagnosed conditions
hi ? everyone, need advice, I’m really struggling with this Lyme disease, im totally messed up, i can’t move can’t do everything like standing or even move. Haven’t got the energy to think just want to go to sleep all the time, please advise, need help, just the way I’ve wrote this shows i can’t think or do. 

Comments

  • susan48
    susan48 Online Community Member Posts: 2,213 Championing
    @cripps, I don’t know anything about Lyme Disease but I’d advise you to speak to your doctor or specialist 
  • cripps
    cripps Online Community Member Posts: 412 Empowering
    Thank you, I’ve been trying to get through to the doctors all day but no joy. I’ll just keep trying. Just feeling really ill. ?
  • cripps
    cripps Online Community Member Posts: 412 Empowering
    Just updated if interested, i got through to the doctors and I’m seeing him tomorrow so I’ll see what happens. Anything is better than this and how i feel. 
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Thanks for the update @cripps, I hope you are feeling a little better. Fingers crossed the doctor will be able to help in some way!
  • cripps
    cripps Online Community Member Posts: 412 Empowering
    Thank you for thinking of me, I’ll let you know how things go tomorrow ?
  • susan48
    susan48 Online Community Member Posts: 2,213 Championing
    Hope you got answers from your doctor @cripps
  • cripps
    cripps Online Community Member Posts: 412 Empowering
    Hi there , been to the doctors this morning and apparently he took advice from the hospital and they have adviced him to give me one more week of antibiotics, if things don’t improve at the end of the course then I have to go into hospital where they will take a more aggressive course of treatment what that entails I’m not sure so will shall see by next week. I really do feel so Ill, I’m not sure myself if I’ll make it to the end of the course because at the moment I’m don’t even know what day it is. Thank you for your concern it’s nice to know there’s people thinking of me. I’ll keep you updated. ??
  • susan48
    susan48 Online Community Member Posts: 2,213 Championing
    @cripps at least now you’v more antibiotics and a plan if they don’t help.

    Take care
  • cripps
    cripps Online Community Member Posts: 412 Empowering
    Hi there, just seeing if there’s anyone around, off to the hospital tomorrow morning because the antibiotics aren’t working and I’m getting worse, really struggling with this Lyme disease, I’ve been ill before but this has nocked me for six. Hope they can sort me out don’t fancy having this for much longer loosing the will to live. 
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Fingers crossed for you, @cripps!
  • cripps
    cripps Online Community Member Posts: 412 Empowering
    Thank you ? it be nice to get things sorted for a change in stead of waiting for months till someone makes a decision. 

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