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Carrie38
Community member Posts: 73 Courageous
Hi i am 40 years old and have cp. I am a long term crutch user and also sometimes a wheelchair
My shoulders and back often go In to spasm and no pain killers help. I responsed well to massage to break down the spasm and helps with pain.
Like most adults with cp the Nhs don't want to help unlike when i was a child I have to go private. If the Nhs helped me with massage I would take less painkillers and save them money there. I need this on a weekly bases and it's too expensive.
My shoulders and back often go In to spasm and no pain killers help. I responsed well to massage to break down the spasm and helps with pain.
Like most adults with cp the Nhs don't want to help unlike when i was a child I have to go private. If the Nhs helped me with massage I would take less painkillers and save them money there. I need this on a weekly bases and it's too expensive.
Comments
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Hi @Carrie38
I have found an NHS Centre that provides massage therapy and reflexology. Have you spoken to your G.P. about a hydrotherapy referral?
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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There is nothing in my area . Also it's always short term if anything I will have cp for life
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I posted a discussion about NICE (National Institute for Clinical Excellence) undertaking a consultation on services for adults with CP. It is our chance to have a voice and shape services going forward. If you would like to read and comment, here is the link https://www.nice.org.uk/guidance/indevelopment/gid-ng10031/consultation/html-content-2
You are right we will have Cerebral Palsy for life and I agree that currently, services are not what we would wish them to be but if we engage with consultations like this, I believe we can affect positive change.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
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