Pheochromocytoma

dougal1
dougal1 Online Community Member Posts: 23 Connected
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hi all,
Has anyone else on here got the same condition as me, l know it's quite rare ( my mum always said l was special), it can go undiagnosed for year's, but has a huge impact on your day to day life, unfortunately other conditions can mask the illness, undiagnosed can cause serious medical issues with one's heart, mine went undiagnosed so now suffering the problems associated with the illness.

Comments

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Hi @dougal1, thanks for sharing this with us. I was under investigation for this a couple of years ago (nothing came of it) and I couldn't believe how rare and unheard of it was! I wonder if you've seen the pheochromocytoma support foundation page?
  • dougal1
    dougal1 Online Community Member Posts: 23 Connected
    Hi Pippa,
    Thank-you for reading and supplying link to site very interesting reading ,tried to sign up to site but it wouldn't let me, I'll try again later 
    Regards 
    Doug 

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