Pheochromocytoma

dougal1

Hi all,
Has anyone else on here got the same condition as me, l know it's quite rare ( my mum always said l was special), it can go undiagnosed for year's, but has a huge impact on your day to day life, unfortunately other conditions can mask the illness, undiagnosed can cause serious medical issues with one's heart, mine went undiagnosed so now suffering the problems associated with the illness.

Pippa_Alumni

Hi @dougal1, thanks for sharing this with us. I was under investigation for this a couple of years ago (nothing came of it) and I couldn't believe how rare and unheard of it was! I wonder if you've seen the pheochromocytoma support foundation page?

dougal1

Hi Pippa,
Thank-you for reading and supplying link to site very interesting reading ,tried to sign up to site but it wouldn't let me, I'll try again later 
Regards 
Doug