Post Polio Syndrome (PPS)

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dernie1
dernie1 Online Community Member Posts: 5 Listener
edited September 2018 in Everyday life
Hello everyone! I'm 64 and have had polio in 1956. A very bad form. Only my head was ok. In time I recovered pretty well. In my late ten years I started to degenerate, feeling more and more weak and many other symthoms and recently I was told I have PPS. I want to know as much possible about.. If anybody reading my post has more details I'll appreciate.?

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  • thespiceman
    thespiceman Online Community Member Posts: 6,283 Championing
    Hello @dernie1   Pleased to meet you . Welcome.

    Thank you for joining and sharing.

    Have a look at our information and advice on Talk about Specific conditions might be useful.

    There will be members of our community who can and will identify what you are going through.

    Have you looked on line for any information and advice . Something to consider.

    We are a supportive community. Friendly, care and share.

    Just ask the community anything some one will know.

    Take care

    @thespiceman
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    edited September 2018
    Welcome to the community @dernie1
    Have you seen the British Polio Fellowship? They have some information about PPS
    The Support Services Team at The British Polio Fellowship provides key information and support for people with Polio and Post Polio Syndrome (PPS), their families and carers and healthcare professionals in the UK.
    For more information please contact our Support Service Team


  • dernie1
    dernie1 Online Community Member Posts: 5 Listener
    Thank you for welcome me. Yes, I've read all about PPS since now.
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Have you been in touch with their support team @dernie1 ?
  • dernie1
    dernie1 Online Community Member Posts: 5 Listener
    No, not yet. You see, I'm Romanian married to an English man. Most of the time we live in Romania. I've just find this site. Bit by bit I'll be in touch with everything. Thank you.?
  • dernie1
    dernie1 Online Community Member Posts: 5 Listener
    No, not yet. Maybe later, thank you!