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Ehlers Danlos Syndrome
Pennylein
Member Posts: 2 Listener
I recently found out that I have Ehlers Danlos Syndrome and various spinal problems including scoliosis. I live in London with my husband & 2 retired racing Greyhounds. I’m a proud Oma to my two little grandsons too.
Replies
Thank you for joining and sharing.
I am sorry to hear this. I have found on line for you.
The Ehlers Danlos Support UK which is the organisation for the condition you have.
The helpline is 0800 9078 518.
Website https// wwwehlers-danlos.org.
Hope that helps.
We are a supportive, friendly community. Share and care.
Please ask if we can advise on anything. Some one will know.
Please take care
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
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Welcome to the community, some of our members have talked about Ehlers Danlos Syndrome.
@elbest - https://community.scope.org.uk/discussion/46626/how-can-we-be-taken-seriously-with-chronic-pain
@timoglock - https://community.scope.org.uk/discussion/33851/making-our-invisible-visible-ehlers-danlos-syndrome-eds-awareness-month
Senior online community officer