Do I have a "congential syndrome"

cowbaygirl
cowbaygirl Online Community Member Posts: 1 Listener
edited November 2018 in Everyday life
I am perplexed and am hoping someone else can fit my puzzle pieces together.
I am 44 years old. 4 years ago I suffered nerve damage which led me to a neurologist. The injury healed but I was left being told I had mild Cerebral Pasly. Fast Forward to now - I am seeing an eye surgeon about my ptsois which leads me to another Neurologist. This amazing person starts piecing together many subtle parts of my health history ... doesn't have a name but says I have a congenital syndrome.  This is what I know. I have clumsy left side. Exaggerated reflexes on left side. Slight head tilt to the left. High arched palate. Had congenital hip displasia on left side. Had a brace for inward turned feet. Hospitalized as an infant with skin condition my mother says looked like my body was an open sore. I have asymmetrical eye sockets. I have mild scoliosis. I have OCD and anxiety. I have lichen schlerosis. I have chronic constipation. My depth perception is poor. My ability to remember a face is ****. My sense of direction is non existent.  I have a wonderful life - nothing that is preventing me from having a full life - but am now curious if some of these  subtle things can give me a name for my "congential syndrome"

Comments

  • debbiedo49
    debbiedo49 Online Community Member Posts: 2,890 Championing
    Welcome and good luck
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Hi @cowbaygirl welcome to the community! Unfortunately, we are not medical professionals therefore we do not know. Hopefully, there is someone who experiences similar symptoms as yourself and hopefully put a name to it :)
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @cowbaygirl

    Welcome it’s great to meet you this evening.

    “Wow” you have got a very very long story.

    Hopefully one of our members might be able to shed some light on things for you?????
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,602 Championing
    Welcome to the community @cowbaygirl
    @Ami2301 says we cant give medical advice here and so it would be better to speak to a medical professional :)