Trigeminal neuralgia is killing me.

Eadiesmummy1
Eadiesmummy1 Online Community Member Posts: 90 Contributor
in Neurological impairments and pain
Im in agony. Pure agony. Im crying whilst im typing. Its happening spontaneously i darent move. Any tips would be brilliant! 

Comments

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Oh I'm so sorry to hear this @Eadiesmummy1, that sounds really debilitating.

    Hopefully our members will be in touch soon and able to share some tips, but do know that you're not alone and you're among others who understand, here on the community. I really hope things become more comfortable soon.
  • Eadiesmummy1
    Eadiesmummy1 Online Community Member Posts: 90 Contributor
    thank you so much @Pippa_Scope x
  • Markmywords
    Markmywords Online Community Member Posts: 416 Empowering
    I've had neuralgia following Shingles from an autoimmune problem. My GP gave me Gabapentin which took the edge off. It's not always effective though.
    Better to see a GP than listen to advice from a forum though, no matter how well intentioned.

    Good luck.
  • Eadiesmummy1
    Eadiesmummy1 Online Community Member Posts: 90 Contributor
    I ended up going to the GP. i take pregabalin 450mg daily, so shes just upped my dose. The advice i wanted was managing the pain at home, like hot water bottles. anything i can try really. Thanks for your advice @Markmywords xxx 
  • Markmywords
    Markmywords Online Community Member Posts: 416 Empowering
    edited November 2018
    If you've tried hot then try cold, not right against the skin, of course. Then try alternating.
    If ice works in a wet flannel there are proper things you can buy;


  • Eadiesmummy1
    Eadiesmummy1 Online Community Member Posts: 90 Contributor
    thank you, will invest in one xxx 
  • Angiebabes2410
    Angiebabes2410 Online Community Member Posts: 70 Contributor
    Are you able to get in a bath ? If you have a bath, try having a long soak in the bath before going to bed, make sure your bed is also lovely and warm and you should be able to relax and get some rest. Maybe it can help you xx wish you all the best  
  • Eadiesmummy1
    Eadiesmummy1 Online Community Member Posts: 90 Contributor
    Thank you @Angiebabes2410! i did it and it worked. Had a good sleep last night didnt wake up until 10 so must have needed it :-) xxx

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