cannot afford to reduce my hours and I'm not unwell enough for PIP.

Options
Nightfire
Nightfire Online Community Member Posts: 9 Listener
edited October 2021 in Benefits and income
I was told my GP was 95% certain I had Fibromyalgia almost two years ago. A consultant in pain management confirmed it this week.

Comments

  • CockneyRebel
    CockneyRebel Online Community Member Posts: 5,188 Championing
    Hi and welcome
    Sorry to hear this
    We have many members with fibro who I am sure will be in touch soon
    If we can help in any way please let us know
  • AnkyieSpon
    AnkyieSpon Online Community Member Posts: 138 Empowering
    Hi @Nightfire, I was diagnosed with Fibromyalgia a year ago, can I help in any way?
    Here to help. 
  • Nightfire
    Nightfire Online Community Member Posts: 9 Listener
    Thanks AnkyieSpon, I am seriously considering having to reduce my hours at work as this worsens. I am really struggling (long hours). Trouble is, I cannot afford to reduce my hours and I'm not unwell enough for PIP.
  • AnkyieSpon
    AnkyieSpon Online Community Member Posts: 138 Empowering
    @Nightfire are you on any sort of painkillers or other mess for the fibro? 
  • Nightfire
    Nightfire Online Community Member Posts: 9 Listener
    Pregabalin, Corydalis, Magnesium
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Hi @Nightfire, and a warm welcome to the community! I wonder whether it's worth talking to your employer about reasonable adjustments?
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @Nightfire

    Good Morning & Welcome ??

    It’s great to meet you today ?????

    Yes I have also got Chronic Pain/CRPS?????

    I have had this since 2005!!!!!!!!!!

    Please please let me know if I can help you further?????

  • AnkyieSpon
    AnkyieSpon Online Community Member Posts: 138 Empowering
    @Nightfire who told you you are not sick enough? Have you had an assessment already? I'm having my assessment Monday, I work full time I don't look sick but I know how severe I am! If I can help in anyway...
  • Nightfire
    Nightfire Online Community Member Posts: 9 Listener
    Thanks! I did a self-assessment on the website. Four points was the highest I scored and I  needed eight minimum. I can still work and am capable of looking after myself so...I  am struggling with the long shifts though. Hope all goes well for you on Monday.
  • AnkyieSpon
    AnkyieSpon Online Community Member Posts: 138 Empowering
    @Nightfire did you put everything online when you filled in the form? It took me weeks to do mine as things kept coming to mind...... Like anxiety, forgetfulness, having to depend on apps to remind me to take meds or ho places...... Make a note of every little thing and speak to your employer too. They might help. Feel free to stay in touch. Good luck
  • Nightfire
    Nightfire Online Community Member Posts: 9 Listener
    I'm not that bad atm. Going that way though - unfortunately!

Categories