Replies

• CockneyRebel Member Posts: 5,258 Disability Gamechanger

  December 2018

  Hi and welcome

  Sorry to hear this
  

  We have many members with fibro who I am sure will be in touch soon

  If we can help in any way please let us know
  

  Be all you can be, make  every day count. Namaste

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• AnkyieSpon Member Posts: 138 Pioneering

  December 2018

  Hi @Nightfire, I was diagnosed with Fibromyalgia a year ago, can I help in any way?
  Here to help. 

  Tina 

  (Ankyie Spon)
  I'm a Pain Warrior

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• Nightfire Member Posts: 9 Listener

  December 2018

  Thanks AnkyieSpon, I am seriously considering having to reduce my hours at work as this worsens. I am really struggling (long hours). Trouble is, I cannot afford to reduce my hours and I'm not unwell enough for PIP.

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• AnkyieSpon Member Posts: 138 Pioneering

  December 2018

  @Nightfire are you on any sort of painkillers or other mess for the fibro? 

  Tina 

  (Ankyie Spon)
  I'm a Pain Warrior

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• Nightfire Member Posts: 9 Listener

  December 2018

  Pregabalin, Corydalis, Magnesium

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• Pippa_Scope Member Posts: 5,856 Disability Gamechanger

  December 2018

  Hi @Nightfire, and a warm welcome to the community! I wonder whether it's worth talking to your employer about reasonable adjustments?

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• steve51 Community champion Posts: 7,175 Disability Gamechanger

  December 2018

  Hi @Nightfire
  
  Good Morning & Welcome 🙏🙏
  
  It’s great to meet you today 👍👍👍👍👍
  
  Yes I have also got Chronic Pain/CRPS?????
  
  I have had this since 2005!!!!!!!!!!
  
  Please please let me know if I can help you further?????
  
  

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• AnkyieSpon Member Posts: 138 Pioneering

  December 2018

  @Nightfire who told you you are not sick enough? Have you had an assessment already? I'm having my assessment Monday, I work full time I don't look sick but I know how severe I am! If I can help in anyway...

  Tina 

  (Ankyie Spon)
  I'm a Pain Warrior

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• Nightfire Member Posts: 9 Listener

  December 2018

  Thanks! I did a self-assessment on the website. Four points was the highest I scored and I  needed eight minimum. I can still work and am capable of looking after myself so...I  am struggling with the long shifts though. Hope all goes well for you on Monday.

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• AnkyieSpon Member Posts: 138 Pioneering

  December 2018

  @Nightfire did you put everything online when you filled in the form? It took me weeks to do mine as things kept coming to mind...... Like anxiety, forgetfulness, having to depend on apps to remind me to take meds or ho places...... Make a note of every little thing and speak to your employer too. They might help. Feel free to stay in touch. Good luck

  Tina 

  (Ankyie Spon)
  I'm a Pain Warrior

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• Nightfire Member Posts: 9 Listener

  December 2018

  I'm not that bad atm. Going that way though - unfortunately!

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