cannot afford to reduce my hours and I'm not unwell enough for PIP.
Nightfire
Member Posts: 9 Listener
I was told my GP was 95% certain I had Fibromyalgia almost two years ago. A consultant in pain management confirmed it this week.
Comments
-
Hi and welcomeSorry to hear thisWe have many members with fibro who I am sure will be in touch soonIf we can help in any way please let us knowBe all you can be, make every day count. Namaste
-
Hi @Nightfire, I was diagnosed with Fibromyalgia a year ago, can I help in any way?
Here to help.Tina(Ankyie Spon)
I'm a Pain Warrior -
Thanks AnkyieSpon, I am seriously considering having to reduce my hours at work as this worsens. I am really struggling (long hours). Trouble is, I cannot afford to reduce my hours and I'm not unwell enough for PIP.
-
@Nightfire are you on any sort of painkillers or other mess for the fibro?Tina(Ankyie Spon)
I'm a Pain Warrior -
Pregabalin, Corydalis, Magnesium
-
Hi @Nightfire, and a warm welcome to the community! I wonder whether it's worth talking to your employer about reasonable adjustments?
-
Hi @Nightfire
Good Morning & Welcome 🙏🙏
It’s great to meet you today 👍👍👍👍👍
Yes I have also got Chronic Pain/CRPS?????
I have had this since 2005!!!!!!!!!!
Please please let me know if I can help you further?????
-
@Nightfire who told you you are not sick enough? Have you had an assessment already? I'm having my assessment Monday, I work full time I don't look sick but I know how severe I am! If I can help in anyway...Tina(Ankyie Spon)
I'm a Pain Warrior -
Thanks! I did a self-assessment on the website. Four points was the highest I scored and I needed eight minimum. I can still work and am capable of looking after myself so...I am struggling with the long shifts though. Hope all goes well for you on Monday.
-
@Nightfire did you put everything online when you filled in the form? It took me weeks to do mine as things kept coming to mind...... Like anxiety, forgetfulness, having to depend on apps to remind me to take meds or ho places...... Make a note of every little thing and speak to your employer too. They might help. Feel free to stay in touch. Good luckTina(Ankyie Spon)
I'm a Pain Warrior -
I'm not that bad atm. Going that way though - unfortunately!
Brightness
Categories
- 48.4K All Categories
- 9.6K Start here and say hello!
- 3.9K Coffee lounge
- 3.9K Disability rights and campaigning
- 1.4K News and opportunities
- 134 Community updates
- 11.3K Talk about your situation
- 1.6K Children, parents, and families
- 622 Work and employment
- 517 Education
- 939 Housing, transport, and independent living
- 908 Aids, adaptations, and equipment
- 237 Dating, sex, and relationships
- 245 Exercise and accessible facilities
- 19.1K Talk about money
- 1.7K Benefits and financial support
- 4.2K Employment and Support Allowance (ESA)
- 11.2K PIP, DLA, and AA
- 2K Universal Credit (UC)
- 3.5K Talk about your impairment
- 1.2K Cerebral palsy
- 575 Chronic pain and pain management
- 637 Rare, invisible, and undiagnosed conditions
- 691 Autism and neurodiversity
- 822 Mental health and wellbeing
- 284 Sensory impairments
Do you need advice on your energy costs?
Scope’s Disability Energy Support service is open to any disabled household in England or Wales in which one or more disabled people live. You can get free advice from an expert adviser on managing energy debt, switching tariffs, contacting your supplier and more. Find out more information by visiting our
Disability Energy Support webpage.
