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Medical intervention in adulthood
lucyscoobs
Member Posts: 2 Listener
Hi there, I was hoping to get some advice on medical intervention for cp in adulthood.
I'm 25 and was diagnosed with cp when I was 3. I had quite a bit of medical input as a child but as soon as I turned 16 I've had nothing. I was discharged from physio, my speciallis and any investigationI I was having at the time stopped.
I carried on as normal, plodded along and did my best and struggled my way through the past 9 years with help from only family.
It wasn't until last year when they completely stopped my disability benefit that I realized that this is crazy. I had no evidence to support my struggles and I was penalised massively for this. I was being told that what I was claiming was a lie and my daily pain was non existent.
I realised then that my pride had not just scuppered me for any financial help but for medical help too. I pretend I'm "normal" but in actual fact, I'm in pain ALL of the time and I'm getting more exhausted as time goes by.
I'm hoping that someone has been in a similar situation as mine but has accessed help. Where do I start? Something has to give but I'm sure there's something out there for me? Any advice would be so much appreciated. TIA.
I'm 25 and was diagnosed with cp when I was 3. I had quite a bit of medical input as a child but as soon as I turned 16 I've had nothing. I was discharged from physio, my speciallis and any investigationI I was having at the time stopped.
I carried on as normal, plodded along and did my best and struggled my way through the past 9 years with help from only family.
It wasn't until last year when they completely stopped my disability benefit that I realized that this is crazy. I had no evidence to support my struggles and I was penalised massively for this. I was being told that what I was claiming was a lie and my daily pain was non existent.
I realised then that my pride had not just scuppered me for any financial help but for medical help too. I pretend I'm "normal" but in actual fact, I'm in pain ALL of the time and I'm getting more exhausted as time goes by.
I'm hoping that someone has been in a similar situation as mine but has accessed help. Where do I start? Something has to give but I'm sure there's something out there for me? Any advice would be so much appreciated. TIA.
Replies
Specialist Information Officer - Cerebral Palsy
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Thank you so much for your reply.
I received DLA up until last year but didn't qualify for Pip. I'm currently going through the appeals process which is going pretty horribly really. I have nothing to back my claim up and can't access any medical evidence. The whole process has made me feel more disabled than I ever have.
I will definitely do what you have suggested although I doubt it will help for my pip appeal as it's being heard end of January. Regardless it will be great to maybe manage my pain so thank you 😊
Specialist Information Officer - Cerebral Palsy
Want to tell us about your experience on the community? Talk to our chatbot and let us know.