Has anyone else been diagnosed with ME instead of hEDS? — Scope | Disability forum

Has anyone else been diagnosed with ME instead of hEDS?

Gracie123
Gracie123 Member Posts: 2 Listener

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  • Gracie123
    Gracie123 Member Posts: 2 Listener
    Hi has anyone else been diagnosed with ME instead of hEDS.  My daughter has other symptoms like constant urine infections and low vitamins D which I cannot find relate to ME. Thank you 
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,793 Disability Gamechanger
    Hi @Gracie123, and a warm welcome to the community!

    Thanks for sharing this with us. In a completely personal capacity I know many of my friends have been given a hEDS diagnosis after being diagnosed with ME, sometimes instead of, sometimes in addition to, as the symptoms can be very similar.

    However, if you have concerns or you're wanting to investigate this further, do talk to your GP about your concerns as they will be best placed to help and organise diagnostic tests.

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