Has anyone else been diagnosed with ME instead of hEDS?

Gracie123
Member Posts: 2 Listener
Hello
Comments
-
Hi has anyone else been diagnosed with ME instead of hEDS. My daughter has other symptoms like constant urine infections and low vitamins D which I cannot find relate to ME. Thank you
-
Hi @Gracie123, and a warm welcome to the community!
Thanks for sharing this with us. In a completely personal capacity I know many of my friends have been given a hEDS diagnosis after being diagnosed with ME, sometimes instead of, sometimes in addition to, as the symptoms can be very similar.
However, if you have concerns or you're wanting to investigate this further, do talk to your GP about your concerns as they will be best placed to help and organise diagnostic tests.
Brightness
Categories
- 54K All Categories
- 10.6K Start here and say hello!
- 5K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities
- 154 Community updates
- 12.1K Talk about your situation
- 1.8K Children, parents, and families
- 792 Work and employment
- 588 Education
- 1.2K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 291 Dating, sex, and relationships
- 265 Exercise and accessible facilities
- 21.6K Talk about money
- 2.1K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.5K PIP, DLA, and AA
- 2.6K Universal Credit (UC)
- 4.1K Talk about your impairment
- 1.3K Cerebral palsy
- 687 Chronic pain and pain management
- 705 Rare, invisible, and undiagnosed conditions
- 760 Autism and neurodiversity
- 937 Mental health and wellbeing
- 311 Sensory impairments