Has anyone else been diagnosed with ME instead of hEDS?
Options

Gracie123
Online Community Member Posts: 2 Listener
Hello
0
Comments
-
Hi has anyone else been diagnosed with ME instead of hEDS. My daughter has other symptoms like constant urine infections and low vitamins D which I cannot find relate to ME. Thank you0
-
Hi @Gracie123, and a warm welcome to the community!
Thanks for sharing this with us. In a completely personal capacity I know many of my friends have been given a hEDS diagnosis after being diagnosed with ME, sometimes instead of, sometimes in addition to, as the symptoms can be very similar.
However, if you have concerns or you're wanting to investigate this further, do talk to your GP about your concerns as they will be best placed to help and organise diagnostic tests.0
Categories
- All Categories
- 15.2K Start here and say hello!
- 7.2K Coffee lounge
- 87 Games den
- 1.7K People power
- 118 Announcements and information
- 24.1K Talk about life
- 5.7K Everyday life
- 396 Current affairs
- 2.4K Families and carers
- 863 Education and skills
- 1.9K Work
- 523 Money and bills
- 3.6K Housing and independent living
- 1K Transport and travel
- 880 Relationships
- 255 Sex and intimacy
- 1.5K Mental health and wellbeing
- 2.4K Talk about your impairment
- 863 Rare, invisible, and undiagnosed conditions
- 921 Neurological impairments and pain
- 2.1K Cerebral Palsy Network
- 1.2K Autism and neurodiversity
- 39.1K Talk about your benefits
- 5.9K Employment and Support Allowance (ESA)
- 19.5K PIP, DLA, ADP and AA
- 8.1K Universal Credit (UC)
- 5.6K Benefits and income