polyradiculopathy, anybody else?

goblinqueen
goblinqueen Online Community Member Posts: 16 Connected
Recently been diagnosed with polyradiculopathy after years of it could be this and it could be that all thanks to the negligence of a registrar at a doctors. 
Hoping to say hi to anyone else who's going through this and hopefully support each other 

Comments

  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @goblinqueen

    Good Evening @ Welcome ??

    It’s great to meet you today???

    I’m very very sorry to hear about your problems to date.

    I am one off a number off Community Champion’s

    We are here to help & assist any new members!!!!!!!

    Please please let me know if there’s anything that I can help you with ?????

    @steve51
  • goblinqueen
    goblinqueen Online Community Member Posts: 16 Connected
    Hello :) thank you for the nice welcome , hopefully I'll get to meet through here a few more people that are going through the same thing so we can all support each other through the tough times and dark days 

  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @goblinqueen

    Yes you will find us a very “friendly bunch”

    @steve51
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Hi @goblinqueen, just wanted to say a belated warm welcome to the community. It sounds like you've had a really frustrating time of it but I'm glad that you're finding answers and moving forwards.

    I'm not familiar with polyradiculopathy myself, I'd love to hear more about it if you're comfortable sharing?
  • goblinqueen
    goblinqueen Online Community Member Posts: 16 Connected
    Hi Pippa 

    the best way way to describe polyradiculopathy is imagine an electric cable cut open that’s your nerves , for some reason my immune system has started killing off my motor nerves but the neurologist can’t find out why so waiting for more tests after all the usual ones of MRI , nerve conduction studies , nerve biopsy you name it 
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Oh I'm sorry to hear that @goblinqueen, that sounds really tough. Thank you for sharing!
  • goblinqueen
    goblinqueen Online Community Member Posts: 16 Connected
    that's ok