polyradiculopathy, anybody else?
goblinqueen
Community member Posts: 16 Connected
Recently been diagnosed with polyradiculopathy after years of it could be this and it could be that all thanks to the negligence of a registrar at a doctors.
Hoping to say hi to anyone else who's going through this and hopefully support each other
Hoping to say hi to anyone else who's going through this and hopefully support each other
Comments
-
Hi @goblinqueen
Good Evening @ Welcome ??
It’s great to meet you today???
I’m very very sorry to hear about your problems to date.
I am one off a number off Community Champion’s
We are here to help & assist any new members!!!!!!!
Please please let me know if there’s anything that I can help you with ?????
@steve51 -
Hello thank you for the nice welcome , hopefully I'll get to meet through here a few more people that are going through the same thing so we can all support each other through the tough times and dark days
-
-
Hi @goblinqueen, just wanted to say a belated warm welcome to the community. It sounds like you've had a really frustrating time of it but I'm glad that you're finding answers and moving forwards.
I'm not familiar with polyradiculopathy myself, I'd love to hear more about it if you're comfortable sharing? -
Hi Pippa
the best way way to describe polyradiculopathy is imagine an electric cable cut open that’s your nerves , for some reason my immune system has started killing off my motor nerves but the neurologist can’t find out why so waiting for more tests after all the usual ones of MRI , nerve conduction studies , nerve biopsy you name it -
Oh I'm sorry to hear that @goblinqueen, that sounds really tough. Thank you for sharing!
-
that's ok
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 482 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 230 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 806 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 845 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.2K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 886 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions