Hi, my name is MirandaQ!
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MirandaQ
Community member Posts: 9 Listener
Thank you for allowing me into your community.
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Hi @MirandaQ welcome to the community! Would you like to tell us a bit about yourself?Disability Gamechanger - 2019
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Hi @MirandaQ, and welcome! Great to have you here
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Thank you for your warm welcome. Approx 5 years ago I became ill after which I noticed a huge problem with my memory. I had many MRI/Cat scans and tests for dementia, however, the final verdict was ME/CFS. This was difficult enough to cope with as I relied heavily on my memory, I went from hyperphantasis to aphantasia (having a visual "minds eye" to visualisation - even family faces) along with the effect on my short term memory. Then about 18 months ago began the physical symptoms; plantar fasciitis, vertigo, severe back ache, painful joints and muscles, chronic fatigue this has now escalated to the point to where many days I am bed bound and the other days I can only just manage to get downstairs. I haven't been out of the house since Christmas. Hopefully this is my illness at it's worst but guess only time will tell.
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Hi Steve, You don't realise important your memory is until its gone. Then the body suddenly notices that something is wrong and decides to join in sounding the alarm bells. I have been having a look round, there's lots of useful information here, thank you.
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