I have Cerebral palsy and also have the Intrathecal Baclofen Pump

sunflower23
sunflower23 Online Community Member Posts: 15 Connected
edited January 2018 in Cerebral Palsy Network
Hi am sunflower 
I have Cerebral palsy and also have the Intrathecal Baclofen Pump inside my back to help with muscle spasms in my legs and arms 
If you like to ask me any thing please do about the pump sunflower x






Comments

  • JennysDad
    JennysDad Online Community Member Posts: 2,290 Championing
    Hello @sunflower23, and what a charming ID that is. Welcome to the community. My beautiful, late daughter (in the picture) had CP among a number of other conditions, and many of her many friends were also sufferers. I had to look up 'intrathecal Baclofen pump' though :smile:  Is it working for you?
    Lovely to meet you, Sunflower, and I hope we'll get to know you better.
    Warmest best wishes to you,
    Richard
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Welcome to the community, @sunflower23!
  • sunflower23
    sunflower23 Online Community Member Posts: 15 Connected
    Thanks 
  • Amberjo
    Amberjo Online Community Member Posts: 1 Listener
    edited February 2019
    Hi @sunflower23
    i am 42 with spastic cerebral palsy and up until lately have always walked on my own. I have now started to have lots of issues with mobility having to hold my husbands hand to walk because my legs feel so stiff and heavy they just don’t want to move no matter how much I try. I am currently taking oral baclofen but it seems to be doing nothing. I am thinking of talking to a Nero doc about the pump. Would appreciate hearing about your experience with it.

    Have a great day 
    amber
  • Richard_Scope
    Richard_Scope Posts: 3,916 Cerebral Palsy Network
    Good to meet you and thanks for posting. We have some information about Intracathal Baclofen that might be helpful to you. Also, the website of the pump manufacturers is interesting. http://www.medtronic.com/uk-en/patients/treatments-therapies/drug-pump-severe-spasticity/living-with/during-treatment-pump-replacement.html


Categories