Autonomic Dysfunction

cfd44
cfd44 Community Member Posts: 2 Listener
edited October 2021 in Rare, invisible, & undiagnosed conditions
Is anyone living with autonomic dysfunction and can give me some advice on how to live with this condition

Comments

  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,764 Pioneering
    edited February 2019
    Hi @cfd44

    Thank you for sharing this with us. Hopefully some of our members may be able to support you. 

    You may find this page useful on Autonomic dysfunction

    Please let us know if you have any questions.
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Hi @cfd44, and a warm welcome to the community! 

    Is there anything in particular you're looking for support with? Many of our members will have experience with autonomic dysfunction but for anything medical, your GP should always be your first port of call. 
  • cfd44
    cfd44 Community Member Posts: 2 Listener
    I was just looking for some advice from people living with it. It's lights noise and patterns I react very severely too and it's leaving me housebound
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Oh I'm sorry to hear that @cfd44, that must be tough. 

    Everybody reacts differently and benefits from different things, but I have autonomic dysfunction myself and have found the POTS UK website really helpful. There's lots of different sections under the Living with POTS category that may be helpful, and hopefully our members will be able to share some tips too!

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