10 year old daughter who has a global learning delay, awarded low rate, i have appealed
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jannah
Community member Posts: 6 Listener
Hi everyone so I have a 10 year old daughter who has a global learning delay especially in understanding and social emotional skills.
Everyday can be a battle with her not just with her behaviour but with her understanding things and she's a very vulnerable child that believes she knows 'every person you only have to say hello to her and she will believe that she knows you. She once wrote her name on a man's new bmw car because he said hi to her and she thought he wouldn't mind because she knew him ?. She can't be left without supervision with her 2 year old brother or any other children because of her unpredictable behaviour and can harm the other children. She also has a fascination around men toileting. She has alot of fears and anxieties and won't be left anywhere on her own not even in her own home she has to know someone else is there with her . Her bedtime also becomes my bedtime as she she won't be left alone to sleep she has to have me with her and have her back rubbed to soothe her and it can take a long time to get her to sleep. She still wakes 2-3 times in the night and I have to repeat the whole process again with her. She's still incontinent too. I was awarded low rate care but I have appealed this as I thought she she have been awarded more. Dwp are saying that most children her age still need the amount of supervision she needs and that there's no evidence to back up her night time issues. Has anyone any advice for me on what I do now please .
Everyday can be a battle with her not just with her behaviour but with her understanding things and she's a very vulnerable child that believes she knows 'every person you only have to say hello to her and she will believe that she knows you. She once wrote her name on a man's new bmw car because he said hi to her and she thought he wouldn't mind because she knew him ?. She can't be left without supervision with her 2 year old brother or any other children because of her unpredictable behaviour and can harm the other children. She also has a fascination around men toileting. She has alot of fears and anxieties and won't be left anywhere on her own not even in her own home she has to know someone else is there with her . Her bedtime also becomes my bedtime as she she won't be left alone to sleep she has to have me with her and have her back rubbed to soothe her and it can take a long time to get her to sleep. She still wakes 2-3 times in the night and I have to repeat the whole process again with her. She's still incontinent too. I was awarded low rate care but I have appealed this as I thought she she have been awarded more. Dwp are saying that most children her age still need the amount of supervision she needs and that there's no evidence to back up her night time issues. Has anyone any advice for me on what I do now please .
Comments
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Any advice be very much appreciated
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Hello @jannah Pleased to meet you welcome.
Thank you for joining and sharing.
Sorry to hear about your daughter. I know there will be members of our community who may be able to advise. Also a member of our team.
Offer information and guidance.
I am one of the team of community champions who help and advise new members who join.
I would consider speaking to our helpline and see what help and support a member of our staff can help you with.
0808 800 3333
Please also have a look at our website for further advice and information.
Hope that helps.
Please take care.
@thespiceman
Community Champion
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Hi @jannah
Welcome to the community and sharing this with us. You may find our appealing a DWP decision useful. We also have a learning difficulties discussion you may like to join.
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Thankyou for taking your time to reply I'm just u sure about how I go about fighting her tribunal appeal with the answers they have put against my claim I.e evidence of having to take care of her through the night also they say that it's normal to have to settle a 10 year old child to sleep...i don't get it
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You have to expect that attitude from the DWP, the whole system is corrupt. You have to argue with them at tribunal that it is not normal for a child to need that amount of supervision at night. And if they continue to say it is normal, ask them to prove it.
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Benistmonk said:You have to expect that attitude from the DWP, the whole system is corrupt. You have to argue with them at tribunal that it is not normal for a child to need that amount of supervision at night. And if they continue to say it is normal, ask them to prove it.
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So how do I prove that
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@jannah it is a tricky one, no doubt about that. Most if not all children will insist on climbing into their parents beds. If she is as bad as you say she is, a little video showing why she can't be left alone for 2 minutes should do it.
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Hi,
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She's had a cognitive assessment which has said she has a moderate learning disability age ranging mostly 6-7 years old
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jannah said:So how do I prove that
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yanni said:
Hi,
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Thanlyou so much yanni I'll get chance and sit down to look at all this I'm going to self refer her to a sleep clinic too
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