fibromyalgia — Scope | Disability forum
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fibromyalgia

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mdam
mdam Community member Posts: 11 Connected
edited October 2021 in Rare, invisible, and undiagnosed conditions
My main disability is fibromyalgia. Diagnosed in 2008 but previously told in 1997 it was myalgic encephalomyelitis. Also have osteo arthritis.  Also under active thyroid and on rivaroxoban due to multiple pulmonary emboli.  Also problems with migraines, vertigo ,vitamin b12 deficiency. Had to retire from NHS after 31 years service due to progressive deterioration. Retired September 2017.  I have had the longest and worse flare up ever now in its 14th month. Physically and mentally I feel so I'll. I am barely mobile due to pain. My problem is that the go wants to continue to manage it himself so I am getting nowhere.
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  • thespiceman
    thespiceman Community member Posts: 6,388 Disability Gamechanger
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    Hello @mdam   Pleased to meet you welcome.

    Thank you for joining and sharing.

    Sorry to hear that your not good. How can we help you as a community?

    I am one of the team of community champions who guide, advise and help new members who join the forum.

    We are friendly,, care and share. Have a look around our website.

    Please ask if we can help and advise.  Some one will know from our community or a member of our team.

    Please take care.

    @thespiceman
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  • mdam
    mdam Community member Posts: 11 Connected
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    Thank you
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  • beckyboo14
    beckyboo14 Community member Posts: 21 Listener
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    How are you? Do you claim PIP? 
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  • mdam
    mdam Community member Posts: 11 Connected
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    Feel and look really ill at the moment. Seeing GP again Wednesday for review. 
    Yes I am on pip. Have had enhanced rate since 20008. Previously DLA before pip.
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  • Adam_Alumni
    Adam_Alumni Scope alumni Posts: 164 Pioneering
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    Hi @mdam

    Welcome

    I'm sorry to hear you are in such pain.

    You may be interested in our Chronic pain discussions where you may find advice.   


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