Recently been diagnosed with fibromyalgia and chronic fatigue syndrome

Jilliana · March 2019

I’ve recently been diagnosed with fibromyalgia and chronic fatigue syndrome

Antonia_Alumni · March 2019

Hi @Jilliana welcome to the community.

Thank you for joining us, you may be interested in our dealing with chronic pain discussions.

Please let us know if you have any questions

steve51 · March 2019

Hi @jillian

Good Afternoon it’s great to meet you this afternoon.

I am one of the “Community Champion’s” here at “Scope”

Please please let me know if there’s anything that I can help/support you!!!!!!!

@steve51

XenasMum · March 2019

@Jilliana how did you get diagnosed with both conditions? I've been diagnosed with fybro 3 years now and any other problems seem to get put down as just fybro
A friend of mine has said to ask about ME and MS but I'm really not confident that anyone will listen. Although I am hopefully seeing rheumatology

Good luck hun xxx

markyboy · March 2019

I have had Fibromyalgia for 10 years and diagnosed with M E seven years ago the Rheumatology dept sent me to the mental health clinic to get the M E diagnosis because it is only diagnosed when all medical tests have been carried out to rule out other medical conditions with the same symptoms

Sam_Alumni · March 2019

FMA UK is a UK charity for people with Fribromyalgia, have you seen these before? They have:

National Helplines on fibromyalgia and benefits issues
An online support forum that is available 24/7 with office bearers of the charity being available to help e.g. our benefits advisor helps with benefits queries and sends information regularly.
UK wide system of support groups

Recently been diagnosed with fibromyalgia and chronic fatigue syndrome

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