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Crps

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kez19
kez19 Community member Posts: 8 Listener
hi cam anyone give me any tips please I’ve spoke before about my pain and I’m still awaiting my pain clinic appointment but I’m at the end of my tether I’m in constant pain in both my arms and now my ankle after only breaking my wrist 14 months ago ? Pain killers are not working and I don’t no what to do 

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  • thespiceman
    thespiceman Community member Posts: 6,388 Disability Gamechanger
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    Hello @kez19 Sorry to hear you in pain.

    Have you spoken to your Doctor might be worth asking for additional advice and guidance.

    We are not medical professionals so can not issue medical advice.

    Hope that helps.  Take care. If we can advise with anything else please get in touch. Happy to help .

    @thespiceman


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  • annedh
    annedh Community member Posts: 12 Listener
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    Hi, I have CRPS it is horrid. Don't wait about your GP can prescribe medicine that works on pain recepairs in your brain. I take these and they help. Painkillers just don't work. I don't want to put drug name but they do exist.  Good luck I know it's never ending.
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,671 Disability Gamechanger
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    There's lots of self-help advice available from a variety of organisations supporting people living with long-term pain, such as:

    And the NHS have some thoughts on ways to reduce pain that you might like to look through:

    10 ways to reduce pain

    Whether your pain has just come on or you've lived with it for years, these tried-and-tested self-help steps can bring you relief.

    Get some gentle exercise

    Simple, everyday activities like walking, swimming, gardening and dancing can ease some of the pain directly by blocking pain signals to the brain.

    Activity also helps lessen pain by stretching stiff and tense muscles, ligaments and joints.

    It's natural to be hesitant if exercise is painful and you're worried about doing more damage. But if you become more active gradually, it's unlikely you will cause any damage or harm. The pain you feel when you start gentle exercise is because the muscles and joints are getting fitter.

    In the long term, the benefits of exercise far outweigh any increase in pain.

    Read our articles on getting exercise.

    Breathe right to ease pain

    Concentrating on your breathing when you're in pain can help.

    When the pain is intense it's very easy to start taking shallow, rapid breaths which can make you feel dizzy, anxious or panicked. Instead, breathe slowly and deeply. This will help you to feel more in control of the situation and will keep you relaxed and prevent any muscle tension or anxiety from worsening your pain.

    Read books and leaflets on pain

    The Pain Toolkit is a booklet packed with simple practical advice on how to live better with long-term pain.

    There is also a list of suggested self-help books and leaflets on The British Pain Society's website.

    Counselling can help with pain

    Pain can make you tired, anxious, depressed and grumpy. This can make the pain even worse, making you fall into a downward spiral. Be kinder to yourself. Living with pain isn't easy and you can be your own worst enemy by being stubborn, not pacing your activities every day and not accepting your limitations.

    Some people find it useful to seek help from a counsellor, psychologist or hypnotherapist to discover how to deal with their emotions in relation to their pain. Ask your GP for advice and a referral, or read this article on getting access to counselling.

    Distract yourself

    Shift your attention on to something else so the pain isn't the only thing on your mind. Get stuck into an activity that you enjoy or find stimulating. Many hobbies, like photography, sewing or knitting, are possible even when your mobility is restricted.

    Share your story about pain

    It can help to talk to someone else who has experienced similar pain themselves and understands what you're going through.

    Pain ConcernAction on PainArthritis Care and BackCare all have telephone helplines manned by people with long-term pain, who can put you in touch with local patient support groups.

    The healthtalk.org website lets you watch or listen to videos of other people's experiences of pain.

    The sleep cure for pain 

    "Many people with chronic pain dread going to bed as that's when the pain is worst," says Heather Wallace from Pain Concern. But it's important to try to stick to a normal sleep routine so you've got the best chance of sleeping through the night.

    Also, "sleep deprivation can worsen pain", says Heather. Go to bed at the same time each evening, and get up at a regular time in the morning and avoid taking naps in the day. If sleep problems persist, see your GP.

    Read 10 tips to get a good night's sleep.

    Pain Concern has produced a useful leaflet on getting a good night's sleep.

    Take a course

    Self management courses are free NHS-based training programmes for people who live with long-term chronic conditions such as arthritis and diabetes to develop new skills to manage their condition (and any related pain) better on a day-to-day basis.

    Many people who have been on a self-management course say they take fewer painkillers afterwards.

    The best examples are:

    Keep in touch with friends and family

    Don't let pain mean that you lose contact with people.

    Keeping in touch with friends and family is good for your health and can help you feel much better. Try shorter visits, maybe more often, and if you can't get out to visit people, phone a friend, invite a family member round for a tea or have a chat with your neighbour.

    Aim to talk about anything other than your pain, even if other people want to talk about it.

    Relax to beat pain 

    Practising relaxation techniques regularly can help to reduce persistent pain.

    There are many types of relaxation techniques, varying from breathing exercises to types of meditation.

    Ask your GP for advice in the first instance. There may be classes available locally or at your local hospital's pain clinic.

    Read about the top 10 stressbusters.

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