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Mandy808
Mandy808 Community member Posts: 3 Listener
edited April 2019 in Disability rights and campaigning
Hi I'm new here. Not sure what to say or whether this is really for me, but thought I  would give it ago. 
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  • Ami2301
    Ami2301 Community member Posts: 7,942 Disability Gamechanger
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    Hi @Mandy808 welcome to the community! Would you like to tell us a bit about yourself? :)
    Disability Gamechanger - 2019
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  • Mandy808
    Mandy808 Community member Posts: 3 Listener
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    Hi, I am a single disabled mum, have been now for about 4yrs. I got my son an I out of an abusive relationship with my ex husband. The disability I live with is cauda equina, which one operation stopped me from being incontinent and paralyzed, but still have trapped nerves from L1 to S1. I also suffer with PTSD, Anxiety and depression.  I have chronic pain all time. I do have a great support network of family and friends but I find it hard to ask for help knowing they do so much already.  My lad is now 10yrs old and is fantastic really.  I just wish I could do some much more with him rather than just watching him do things?. I had such an active life before all this it makes it difficult for me still to except it. I've lived with it now for about 10yrs. I always try and keep smiling tho. 
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  • steve51
    steve51 Community member Posts: 7,153 Disability Gamechanger
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    Hi @Mandy808

    Good Morning & Welcome to our Community/family.

    We have a number of Members including myself who are suffering with “Chronic Pain”

    I am one off a team of Community Champion’s on here.

    Please let me know if you get stuck!!!! 
    l would be more than happy in helping.
    Please please let me know if there’s anything  that I can help/support you with????

    @steve51

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  • Mandy808
    Mandy808 Community member Posts: 3 Listener
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    Hi Steve51,

    Thank you. I'm currently waiting to go back to the spinal specialist. I have pip causing a lot of stress and worry as they want me to go to an assessment again even tho they have all my evidence and I'm still having ongoing treatment.  If living like it isn't enough.  I really appreciate your support. 
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  • Antonia_Alumni
    Antonia_Alumni Scope alumni Posts: 1,780 Pioneering
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    Welcome to the community @Mandy808 thank you for sharing this with us, I am sorry to hear this. Happy to hear you have a great support system from family and friends. I know what you mean but please do not hesitate to talk to us :) We have some discussion groups you may be interested to join: dealing with chronic pain, mental health and our Disable people discussions.

    We have some information on preparing for a PIP assessment. that you may find useful. I am sorry to hear it has been stressful, a lot of our members can relate to how you are feeling. I hope it all goes well with your spinal specialist appointment. Please keep us updated and if you have any questions, please let us know.
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