I was born with CP and couple of weeks ago I was diagnosed with hypermobility
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CPmiliplayz
Community member Posts: 4 Listener
Hiya, I'm stacey
I was born with CP and couple of weeks ago I was diagnosed with hypermobility
Due to having a bad dislocation knee cap ??
I was born with CP and couple of weeks ago I was diagnosed with hypermobility
Due to having a bad dislocation knee cap ??
Comments
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Hi @CPmiliplayz and welcome to the Community. It is nice to meet you and thank you for sharing with us. I'm sorry to hear of your health struggles. I can only imagine that your bad dislocation knee cap must be quite painful! There are also some members of the Community who have CP and you may find the Scope CP discussion group helpful:-
https://community.scope.org.uk/categories/physical-impairments-and-cerebral-palsy
I hope you enjoy your time on the Community and look forward to seeing you on it. It is a great place for support and to meet new friends. If there is anything at all we can help you with then please just ask. All the best.
Winner of the Scope New Volunteer Award 2019. -
Hello @CPmiliplayz and a warm welcome to our community!
Sorry to hear about your recent news. Please let us know if there's anything we can do to help you or if you need any advice.
In the meantime, please feel free to get involved in our community and make yourself at home in our coffee lounge.Community Manager
Scope -
Hi Stacey! Is your type of hypermobility like EDS? Having that and CP is a lot to cope with. Hope you are ok.
pollyxxx -
@pollyanna1052 yes its,
I been coping with dislocation knee cap 28 years and doctors only just diagnosed it. I currently can't bend my knee.
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cant believe, although I do, it took so long to diagnose a dislocating kneecap!
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Welcome to Scope's community! It's great to have you here. Just to get you started we have our Community Guidelines and How to Guide you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!
If I can help in any way, let me know.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Hello @CPmiliplayz I’m Emma, one of the Community Champions. Welcome to the community. I’m sorry to hear of your struggles. I have CP myself, so it must be an awful lot to manage. We’re all here should you need anything or have any questions.
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Hi @CPmiliplayz
Great to meet you. Has your knee continually dislocated over 28 years or been dislocated for 28 years?
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
It has been dislocating and popping back in over the years
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Wow. I am really sorry to read it has taken the medical profession so long to diagnose hypermobility. I have found some information that might be helpful about Joint Hypermobility Syndrome from the NHS.
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
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