I was born with CP and couple of weeks ago I was diagnosed with hypermobility

CPmiliplayz
CPmiliplayz Online Community Member Posts: 4 Listener
edited August 2019 in Cerebral Palsy Network
Hiya, I'm stacey 
I was born with CP and couple of weeks ago I was diagnosed with hypermobility 
Due to having a bad dislocation knee cap ??

Comments

  • Ails
    Ails Online Community Member Posts: 2,237 Championing
    Hi @CPmiliplayz and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  I'm sorry to hear of your health struggles.  I can only imagine that your bad dislocation knee cap must be quite painful!  There are also some members of the Community who have CP  and you may find the Scope CP discussion group helpful:-

    https://community.scope.org.uk/categories/physical-impairments-and-cerebral-palsy

    I hope you enjoy your time on the Community and look forward to seeing you on it.  It is a great place for support and to meet new friends.  If there is anything at all we can help you with then please just ask.  All the best.   :)
  • Adrian_Scope
    Adrian_Scope Posts: 11,783 Online Community Programme Lead
    Hello @CPmiliplayz and a warm welcome to our community! :smile:
    Sorry to hear about your recent news. Please let us know if there's anything we can do to help you or if you need any advice.

    In the meantime, please feel free to get involved in our community and make yourself at home in our coffee lounge.
  • pollyanna1052
    pollyanna1052 Online Community Member Posts: 2,015 Championing
    Hi Stacey! Is your type of hypermobility like EDS? Having that and CP is a lot to cope with. Hope you are ok.
    pollyxxx
  • CPmiliplayz
    CPmiliplayz Online Community Member Posts: 4 Listener
    @pollyanna1052 yes its,
    I been coping with dislocation knee cap 28 years and doctors only just diagnosed it. I currently can't bend my knee. 
    ?
  • pollyanna1052
    pollyanna1052 Online Community Member Posts: 2,015 Championing
    cant believe, although I do, it took so long to diagnose a dislocating kneecap!
  • Richard_Scope
    Richard_Scope Posts: 3,793 Cerebral Palsy Network

    Welcome to Scope's community! It's great to have you here.  Just to get you started we have our Community Guidelines and How to Guide you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!   

    If I can help in any way, let me know.

     


  • emmarenshaw
    emmarenshaw Online Community Member Posts: 697 Empowering
    Hello @CPmiliplayz I’m Emma, one of the Community Champions. Welcome to the community. I’m sorry to hear of your struggles. I have CP myself, so it must be an awful lot to manage. We’re all here should you need anything or have any questions.
  • Richard_Scope
    Richard_Scope Posts: 3,793 Cerebral Palsy Network
    Hi @CPmiliplayz
    Great to meet you. Has your knee continually dislocated over 28 years or been dislocated for 28 years?
  • CPmiliplayz
    CPmiliplayz Online Community Member Posts: 4 Listener
    It has been dislocating and popping back in over the years 
  • Richard_Scope
    Richard_Scope Posts: 3,793 Cerebral Palsy Network
    Wow. I am really sorry to read it has taken the medical profession so long to diagnose hypermobility. I have found some information that might be helpful about Joint Hypermobility Syndrome from the NHS.


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