Hi, my name is Marie131963!

Hi Emma Thanks for your kindness its good to know there is support I appreciate you
Take care

Marie

Hello chiarieds
Lovely to hear from you, wow you must have a few issues with the hypermobility part of your syndrome. It is awful how you where treated. I know what you mean about them disclosing your profession, I used to get that too. It used to drive me nuts I would go to the doctors say my daughter had a flair up of asthma and I would get your a pharmacy technician what would you give your daughter. A trap if you said what you thought they would get a cob. I think its so they don't talk down to you. Did you work for the NHS in physio then? Your garden sounds wonderful, we have a green house too I don't go in much because I am sensitive to heat with my MS, I manged to have a reaction to one of the steroids and blew my mitral valve so I try not to get to hot and stress my body as I get weak and dizzy in the heat hence the pots. It kills me I used to love weeding my husband has a few raised beds not high enough for me that he grows his fruit and veg. It used to be very therapeutic weeding still I enjoy watching him do it. Neither of my kids like the garden, We bought a little peach tree, the garden centre told us to leave it in the greenhouse, it was full of fruit. I am thinking of telling hubby to drag the nectarine we already had in their too. we used to get may be two a year, always loads of blossom but then the weather will turn so it may be better. We have a couple of cherry trees, and plums, plus two apples one cooking one eating. The Victoria plum is wonderful. Hubby has to get them.

I think more people should find the joy of gardens. Poppy is amazing and Thespiceman good advice. I just have to get my son to calm down. He is either an angle or a Demon. I worry about his working life. He doesn't think he will cope at uni but is actually bright. I managed to get a work placement in a hospital pharmacy I had worked in where he knew people, he coped as long as I took him to the door and collected him and he had a work buddy who he knew. He was natural but in the real world would he get a job I think pharmacy would be good its very black and white in terms of rules. My husband is from New Zealand so my kids are dual nationals. The is much more set up for them there. My daughter is having issues now too she been under a counsellor for a year, developed OCD and I think she has autism too. In some ways she is worse than my son She is having issues with light but I managed to get some special lens glasses which might help. She failed her psychology course when we where on holiday in New Zealand summer before last, She has not been the same since. The school think the same and are trying to sort out between SENCO and counsellor how to get a diagnosis as its not just mental health. She is amazing bright red hair and proud of it. She is thinking of archaeology at Liverpool which is home so I can keep an eye on her.

I am quite torn you don't want labels for the kids as it can be an issue but on the other hand there is extra help while studying time allowances, headphones while noise occurs. 

The DWP seem inconsistent, my mums friend again in his 70's developed a worsening of his condition he had hardening of his arteries, mini strokes and then got cancer. A benefits adviser recommended he apply for an upgrade in his DLA, they phoned out the blue after the CAB filled the forms. He was very up beat and said he tried his best to do things, they sent a letter telling him he no longer qualified for what he had and if he chose to contest it he would  likely be investigated for fraud. So he lost what benefit he had. The poor man died 3 months later after he developed gangrene in his foot and suffered a hear attack. Such a sad situation, So when you see how others are treated. We cannot complain.

I only found scope tonight isn't a great web site people are lovely. Pain is a terrible thing very hard to prove, Your pain must be bad with the osteoarthritis. Cannabis is supposed to be good for this type of pain but alas I don't know the ins and outs of the oil. I have been retired for quite a few years now.  I have heard many stories of cannabis brownie for such conditions. It would make a difference on the precise drugs the local pharmacies should have been given training on something so new and likely to be popular as professional development. 


The OU have been a great experience apart from one course I had to defer on, it had a virtual microscope for a lot of the work, but when my MS is active I go colour blind in one eye and the two eyes could not focus on what I was seeing, I got very frustrated, The last couple of courses have been really rewarding on the social and mental health issues. I should be able to do something with these when finished . I might need a placement to do some more practical listening if I want to be a counsellor. 

It is amazing how each level stretches you with the OU I never thought I would get a degree. I left school with no qualifications and had to start of working and training at night eventually I got a hospital job which led to student technician and never looked back. I always studied even when working, I quite like alternative therapies so I trained in Swedish massage, hot rock therapies and hopi candles but then the MS means my hands are in pain and have no awareness of pressure. It was good when the kids where young. I trained aromatherapy although I never took the exam pregnancy got in the way. I can go on sorry


Its lovely chatting I am sure we will catch up again. soon


Take care

Marie