PKD and constant UTIs

natalie15 · January 2020

hello, I have pkd have constant Uti’s my dad has it just waiting for my mum to have her scan. My youngest son has it and he only has one kidney his other was removed when he was 2. I’m struggling and the moment with the pain and uti other than taking antibiotics and painkillers does anybody else have any suggestions that could help plz

steve51 · January 2020

Hi @natalie15

Welcome to our online community/family ?

l currently assist in & around our community as one of the “champions”

There is a website with regards to your “pkd”

https://www.pkdcharity.org.uk/

I do hope that this is helpful for you???

@steve51

Ami2301 · February 2020

Welcome to the community @natalie15 I'm sorry you've been enduring a lot of pain, how have things been recently?

natalie15 · February 2020

Hello ami2301 the pain has reduced mainly a dull ache all the time. I have an appt end of march hopefully get to know abit more and what is happening

Ami2301 · February 2020

Glad to hear the pain has reduced, I've got my fingers crossed for you for your appointment

natalie15 · February 2020

thank you

Ails · February 2020

Hi @natalie15 and welcome to the Community. It is nice to meet you. How are you feeling now? I'm sorry to hear you are in so much pain and I hope that eases soon. I have had UTI's in the past and know how nasty they can be. I hope your appointment goes well and please let us know how you get on. If we can be of any help/support to you then please just ask. All the best.

natalie15 · February 2020

Thank you I will do. My pain has eased mainly a dull ache all the time now. Some days it gets to me more than others. Thank you for your lovely message

PKD and constant UTIs

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