What to expect next ?

jack2019
jack2019 Online Community Member Posts: 4 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hi , i have been diagnosed with diabetic neuropathy sensory ,motor ,axonal peripheral neuropathy im in extreme pain with burning prickling and stinging im on a fair amount of meds but dont know what to expect next or any way of making life a bit more bearable due to pain and lack of sleep .jack

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  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    Welcome to the community @jack2019 and I'm sorry to hear this. Being newly diagnosed can be daunting as nobody knows what to expect. It will take time to adapt but you'll get there :) has your GP/consultant talked with you about how to manage the pain? Have you been referred to a pain clinic?
  • jack2019
    jack2019 Online Community Member Posts: 4 Listener
    No not yet just in mid air since the corona virus problem difficult got other problems aswell hammer toes numbness balance probs im just stuck feel as ive been given meds the left to it .
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    I can relate, after being newly diagnosed with Ataxia I wasn't given any treatment plan, any advice of what to do next, or anything. It was horrible and scary. It might be worth contacting your GP to talk about a referral to a pain clinic, you might no get an appointment during the pandemic but at least you would be on the waiting list :)

    It's also worth looking online for support groups, it is helpful hearing from others experiences and you don't feel so alone anymore :)
  • jack2019
    jack2019 Online Community Member Posts: 4 Listener
    Thanks it nice to speak to people who understand i will contactmy gp again when i feel less fatigued but im pleased to be talking to fellow sufferes thanks again jack
  • Ami2301
    Ami2301 Online Community Member Posts: 7,877 Championing
    No problem, we will always be here if you have any further questions or just need a chat :) 
  • jack2019
    jack2019 Online Community Member Posts: 4 Listener
    Thankyou?
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Welcome to the community @jack2019. :)

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