Hi, my name is peachysaryna

peachysaryna
peachysaryna Online Community Member Posts: 4 Listener
in Start here and say hello!
Hello,
I'm 18 years old with ehlers danlos syndrome and other comorbid disorders!!

Comments

  • Ails
    Ails Online Community Member Posts: 2,237 Championing
    Hi @peachysaryna and welcome to the Community.  How are you?  It's nice to meet you.  I hope you enjoy your time with us on the forum and find it helpful.  If you have any questions for us or would like some help/support with anything then please just let us know.

    Meantime, I believe that one of our members, @chiarieds, has knowledge of ehlers danlos syndrome, so I will tag her in to connect with you and I'm sure she will get in touch with you.   All the best.  :smile:

    Hi @chiarieds, I thought you may be the best person to support/advise this new member, if ok?  Thanks, @Ails.  :smile:
  • chiarieds
    chiarieds Online Community Member Posts: 17,412 Championing
    edited April 2020
    Hi @peachysaryna - Welcome to the community. I've also got Ehlers-Danlos Syndrome (hypermobile type, or hEDS) & Chiari 1 Malformation, hence my user name (Chiari +eds = chiarieds)!
    Have you joined our EDS Support group? See: https://www.ehlers-danlos.org/
    Here we have a very friendly & supportive community, with quite a few members with EDS, so I hope you enjoy joining in with any discussions, or just chatting here. Please let us know if we can help in any way too. :)
    Thank you @Ails; we were both replying at the same time!

  • Ails
    Ails Online Community Member Posts: 2,237 Championing
    Thanks @chiarieds for that.  Great minds think alike, lol!  :smiley:
  • Adrian_Scope
    Adrian_Scope Posts: 14,323 Online Community Programme Lead
    Welcome to the community @peachysaryna. How are you doing?

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