Gastrostomy feeding
Options
mandycunliffe
Community member Posts: 1 Listener
Hi having some trouble with my daughters mickey button always really sore and red and getting a lot of discomfort with it she’s had the same button since she was three tried the next size and it’s too big. My daughter is non verbal so sometimes hard to get to the bottom of the pain she gets a lot of leakage around the button too. Just wondered if any parents/Carers had come across any sane problems?
Comments
-
Hello @mandycunliffe and a warm welcome to the community. I'm sorry to read your daughter is in such discomfort, it must be really upsetting for the both of you.
Are you still in touch with her specialist at all?Community Manager
Scope -
Hi @mandycunliffe It might be an idea to speak with your G.P. or practice nurse to help get the soreness under control. We have some information about Tube/Peg Feeding There are a series of short videos that might helpScope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Hello @mandycunliffe. Welcome! If possible, try getting in contact with her specialist again and asking for some helpful advice. It may be the tube is too small for her now. A feeding therapist may also be able to help you to resolve her feeding problems as well and advise you accordingly.
Do you have a phone number to call or not? This is always printed on appointment letters usually at the bottom. Or failing that, obtain a email address. If you were discharged from the pediatric feeding clinic, ask for another referral pronto. Hopefully the specialist can help. Best of luck! Say this is urgent.
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions