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Waiting to find out whether I have PIP

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Comments

  • Toffee
    Toffee Community member Posts: 251 Pioneering
    Try not to worry there like this all the time every body times driffrent some quick some slow.. But yes its stressful waiting 
  • jayne2110
    jayne2110 Community member Posts: 11 Connected
    If you can't get through on phone try emailing them I found it quick to get answers that way  
  • sandyxxx
    sandyxxx Community member Posts: 99 Courageous
    Thanks Hun what's the email address ? 
  • jayne2110
    jayne2110 Community member Posts: 11 Connected
  • Brumboy68
    Brumboy68 Community member Posts: 77 Courageous
    It seems a staggering number 166000 people just for pip. The government are in a mess . The world is in a mess. And the sick and disabled suffer. Unfair world...
  • sandyxxx
    sandyxxx Community member Posts: 99 Courageous
    Thanks Jayne will give it a try 
    Brumboy I agree but it's always the sick and disabled that suffer the most. So unfair nothing ever changes the rich hey richer and the poor get poorer law of the land makes me so mad 
    I hate asking for help it makes me feel as though I'm begging 
  • Brumboy68
    Brumboy68 Community member Posts: 77 Courageous
    Don't feel like that ....
    For what we get each week the prime minister spends on a bottle of wine with his dinner.
    For thirty years i paid my national insurance before I got my illness
    And what do I get in return ESA one hundred pound a week. 
    It's like job seekers allowances now can anyone live on there amount . It's impossible.
  • chiarieds
    chiarieds Community member Posts: 16,007 Disability Gamechanger
    edited May 2020
    Hi @sandyxxx - Just to say the email address above is to contact PIP in Northern Ireland; I haven't come across one for other parts of the UK.
    @Brumboy68 - I disagree that you shouldn't get points for the daily living component of PIP. I don't know if you ever looked at the previous long thread about PIP & epilepsy I sent, but here's an important part of it which is a quote from Benefits and Work Guide to PIP 30 June 2018. Please read.
    'Safety and supervision
    Until now, the DWP have argued that a claimant can only score points for being unsafe if harm is
    likely to occur on more than 50% of the occasions on which they attempt an activity.
    So a claimant with epilepsy who has seizures twice a week would not get points for needing
    supervision when cooking. This is because they could not show that it is ‘more likely than not’ that
    they will have a seizure on any given occasion when they prepare food.

    However, on 9th March 2017, in CPIP/1599/2016 a panel of Upper Tribunal judges held that the
    DWP were wrong.
    Instead, they said, the decision maker should look at whether there is a real possibility that harm
    might occur and also at how great the harm might be. The greater the potential harm, the less likely
    it needs to be that it would happen on any specific occasion.
    So, if there is a real possibility that a claimant with epilepsy might have a seizure whilst cooking then
    then they reasonably require supervision for this activity, even though the chances of a seizure
    happening on any specific occasion may be quite small. They should score points for needing supervision even if they don’t actually have anyone to provide it.

    But the Upper Tribunal went even further than this.
    They ruled that where a claimant is at risk all the time, then they may also be at risk when carrying
    out PIP activities that do not carry any additional likelihood of harm.
    So, a claimant may not be at any additional risk of harm if they have a seizure when using the toilet
    or taking medication, for example. But, because they are at risk whatever they are doing, then we
    would argue that they still reasonably require supervision during these activities, because they
    cannot do them safely without supervision.'

    Bearing the above in mind, you certainly should get awarded for the daily living component too. :)


  • Brumboy68
    Brumboy68 Community member Posts: 77 Courageous
    Thankyou for that . It's hard to explain on a form like the pip one that you are at constant risk . It's not designed for EPILEPSY. Its like the cooking question I can cook yes am I safe to cook no, am I at risk yes . Am I able to bath yes am I safe to bath no am I at risk to bath yes. I'm at risk 24 hours a day seven days a week 365 days a year. When my brain gets scrambled it doesn't care whether I'm walking bathing piddling or sunbathing it's taking me to the floor if I'm not allready there , uncouncious with eyes open , on some other planet. Shaking sometimes incontinent sometimes scaring people some hate watching it.... It's a horrible disease where you can be normal one minute and potentially dead ten minutes later if your seizure goes on for that long. But it's difficult for non epileptic professionals to understand. Because they only see you for what you are when they see you , not the state you could be in. I'm sure if you could show them a vid of your seizure activity the decision woukd be made much more quickky
  • chiarieds
    chiarieds Community member Posts: 16,007 Disability Gamechanger
    @Brumboy68 - My understanding is that PIP assessors have a better understanding of epilepsy now. Yes, you're right the PIP claim form isn't the easiest thing to help explain your epilepsy, & the severity of it. It's your anecdotal explanation of having gone into status epilepticus that will gain you the points for daily living, because, as you say, you're constantly at risk. It's not easy explaining how badly your disability affects you, but try to get this across. I would like you to get the award you deserve, & it affects all aspects of your life, not just mobility.
    I do have a little understanding of epilepsy having worked with children that suffered this when I worked as a physio a long time ago.
    I do hope the info I sent will help you. Please kindly let us all know how you get on. My very best wishes to you :)
  • Brumboy68
    Brumboy68 Community member Posts: 77 Courageous
    I will let you know chlorides . I'm not expecting anything too exciting in the phone call. I guess their will their will be an eight week to find out result.
  • sandyxxx
    sandyxxx Community member Posts: 99 Courageous
    Wet MD been having injections in the eye but they haven't worked got no vision in my eye at all other eye poor vision i have arthritis but not on any medication for it 
  • chiarieds
    chiarieds Community member Posts: 16,007 Disability Gamechanger
    Hi @Brumboy68 - You can ring the PIP enquiry line (Tel: 0800 121 4433) about a week after your assessment to ask for a copy of the assessor's report. This will indicate any likely award going off the points given against descriptors at the back of the report. The DWP Decision Maker usually goes with this, tho you'll have to wait for your actual decision letter. :)
  • Brumboy68
    Brumboy68 Community member Posts: 77 Courageous
    Do they mail you a copy of the report
  • chiarieds
    chiarieds Community member Posts: 16,007 Disability Gamechanger
    Yes, they'll post it out.
  • sandyxxx
    sandyxxx Community member Posts: 99 Courageous
    Thanks for your reply yeah all of the above I had an appointment to see the specialist in April but it got cancelled due to this virus next appointment is July .i think that's when I go on the registrar for the blind or visually impaired x
  • sandyxxx
    sandyxxx Community member Posts: 99 Courageous
    What is si ,? Don't want to sound thick it's just all new to me x
  • sandyxxx
    sandyxxx Community member Posts: 99 Courageous
    I have a feeling because I have waited so long they are going to refuse my claim but time will tell 
    I hope your right tho 
  • sandyxxx
    sandyxxx Community member Posts: 99 Courageous
    Ah right it's frustrating waiting for someone to call you I can explain better talking than writing it down on paper I get muddled up lol x
  • Toffee
    Toffee Community member Posts: 251 Pioneering
    Got a letter today of dwp mine did not change I am on daily living standard rate.. I have copd firbomaglia mixed anxiety and depressive disorder. Nerve impingement in shoulder.. I do suffer with all dose this sound right what I got ppl please 

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