Has anyone got pip for NF1

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Cruella_loves_spots
Cruella_loves_spots Online Community Member Posts: 9 Listener
in PIP, DLA, ADP and AA
Hello
I am really new here and this is my first post.
I have applied for PIP as I have nf1 and a few other issues, has anyone gained PiP with my condition?

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  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi @Cruella_loves_spots Welcome to the community.

    PIP isn't about a diagnosis it is about how your condition affects you on a day to day basis with daily living and mobility.

    Have a look at the descriptors and see where you think you would score some points and then decide if you think you should apply

    Good luck and let us know if you need any help or support
  • chiarieds
    chiarieds Online Community Member Posts: 17,092 Championing
    Hi @Cruella_loves_spots - I agree with janer1967. Your diagnosis really doesn't matter so much as NF1 has variable expression, the same as many other disorders, genetic or not. In terms of incidence it's not that rare, unlike NF2.
    Here's a list of the descriptors, in case you haven't come across them. See: https://www.cambridgeshire.gov.uk/asset-library/Scores-for-PIP-Descriptors-2020.pdf

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