Hi, my name is Bell11!
Options
Bell11
Community member Posts: 24 Connected
Hi. I am new to this. Only diagnosed two days ago
Comments
-
hi @Bell11
welcome to you !
im glad you found us here.
i find it helps me to write things down, and I don’t feel quite as on my own, having here to come along to..
hope you find it helpful here
??
Best Wishes
serenity2 -
Hi @Bell11 - Welcome to this friendly community. Thank you for joining & saying about yourself. How are you feeling since you got your diagnosis?
-
-
Hi @Bell11 Welcome to the community great to have you join us. Have a look round and join in any discussions.
I would imagine you are feeling a bit overwhelmed at present, we are here to help and support -
Hello @Bell11 welcome to the community. It must be such a tough time for you at the moment. Know that the community is here whenever you need our support. Please let me know if you need anything or have any questions. We’re all happy to help.
-
Thanks every one for such a warm welcome. I understand the medical side of it to a point. Basically my brain interprets pain at a higher level than some others. I'm just not sure what to do with it all. I have quite a bit of ostioauthritus in hip neck back and knee so I was on some strong pain killers and other stuff. The lovely doctor o saw changed them at diagnosis to a stronger one. And asked me to keep a diary of bad days so I can try and get to grips on what makes me hurt more. ( Mine I very much pain based) He suggested finding a group to learn as much as I could. And finding some exercise that suited me. He said I seem to have some traits towards ME and CFS. Again roughly ok with he medical means tired and some people get exhausted. I'm lost on what I can and cant try... I'm a bit of a strong minded opinionated person (stubborn and pig headed I'm told by my other half). I have had to be to get things done. I'm now with a wonderful man who will help me with anything and every thing... I never like to ask for help. I found that over the last 6 months I've had to ask for more and more help. I will even cause my self pain to do things myself as I dont want to feel like a burden or a failer. It wont control me I will control it,,, yeah right how stupid am I. Did way to much round blackpool Friday, and yesterday I could barely move any part of me..
help please.
Hope this wasnt to much to soon -
Hi @Bell11
Good Morning please don’t worry about the length of your post’s that’s what we are all here for.
Yes I am on some very strong meds for my Pain & currently I’m on max levels on all off them.
The doc’s have told me that I only have one treatment left & the NHS won’t Fund it so I am “Snookered”
How is your “Pain Today”
@steve51 -
Hi Steve. Stiff as normal first thing in a morning. Not a normal week for me this week, I have a week off work "woop woop . Pain doesnt seen to bad at moment more like a dull ache. But still enjoying my coffee.. had a lie in as I'm normal up 5.30am to 6am for the work ahead...
-
Lol.. cant manage with out to coffee infusions either.. I take pregabalin and co-dydramol for the pain.. as I say only just started taking the pregabs. Was on gabapentin,, helped a little but was just told to take more through the day.... spaced out alot.. cant afford that in my line of work. Hope your pain is good for you today and well behaved. I call mine Harry and George. Harry is my left side and George is my right. I some what feel giving them a name I can shout at some one rather than the pain... stupid I know. Lol ?
-
Hi @Bell11
Yes I am on Pregaline, Oxcarbazapin, Amantadine, Amitriptiline, Morphine Patches.
I was also on Gabapentin for sometime as well.
I call mine “Gordon & Ben-it” & something different if it gets “Bad”
Mine cause’s me a “Pain in the Neck” which is something that I have been told for sometime.
@steve51
-
love the names... I have neck pain MRI says ostio. But to be honest I think Fybro as to how it feels. It so refreshing to speak to people who understand and not make me feel I'm going mad cause it's all in my head xx
-
Hi @Bell11
Many thanks yes I did have other names in the beginning (2005)
But I wouldn’t be able to let anyone know about them to be honest.
My (SRS) surgery caused it instantly as the (Radiation) hit the top off my neck then spread into my (Brain)
The (Radiation) continued into my (Brain) causing (Damage) until it worn out.
I had to wait 3yrs pre surgery to find out that it hadn’t worked.
Never mind it was another experience for my ongoing “patient journey”
@steve51
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 103 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions