Paralysed diaphragm phrenic nerve damage

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shafin
shafin Online Community Member Posts: 1 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
Hi all. Been diagnosed phrenic nerve damage and paralized diaphragm following surgery. Struggling with breathlessness on exertion and unable to do my job..getting me down. Would like to hear others experiences

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  • chiarieds
    chiarieds Online Community Member Posts: 17,128 Championing
    Hi @shafin - & welcome to the community from me too. I'm sorry to read about your medical problems, which must be difficult to deal with. I don't have your problems, but there may be others who struggle with breathlessness on exertion from other disorders who may be able to relate. Have you had to stop your job, or having understandable difficulty with this?
  • steve51
    steve51 Online Community Member Posts: 7,121 Championing
    Hi @shafin

    Good Morning it’s great to meet you today.

    I am one of the Community Champion’s here at Scope.

    Yes I have also got Chronic Pain/Nerve Damage 24/7 following Brain Surgery in 2005.

    @steve51
  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi and welcome to the community from me too, glad to have you on board and look forward to seeing you around
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Welcome to the community @shafin! How are you doing today? :)
  • rubio
    rubio Online Community Member Posts: 2 Listener
    Hi Shafin
    I hope you are getting better. What treatment did you have for your condition? BIpap, plication?

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